Charles, As I wrote in my email, I am one of those who would like to be able to support MEGA but will not do so unless significant changes are made. These include the exclusion of Peter White and Esther Crawley from any involvement and the inclusion of severely affected patients and patients who do not attend CFS clinics.
As I'm sure you appreciate, how your members respond may be heavily influenced by how the information is presented to them. Can you tell us, as a member of CMRC, is MEA permitted to inform its member about what it considers to be the valid criticisms that have been raised about MEGA on PR and elsewhere? For instance, would you be able to inform them that many people have expressed concern about the involvement of Peter White (still an advisor) and Esther Crawley due to their promotion of and involvement with PACE, GET, BPS etc? And if you are permitted, is it something you intend to do?
Thanks again for all the time you have spent on this, and for all the work you do.