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Mindy Kitei
CFS Central
cfscentral.com
CFS Central
cfscentral.com
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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While it was inappropriate in this situation, I go want to put in a good word for Tai Chi.
I took a Tai Chi class while I was still able to work, though little else. It was a class for cancer patients that was also open to the general public. The instructor modified the moves for any participant who had difficulty doing the the regular way.
Tai Chi is slow rhythmic movement that improves flexibility and balance. I think, but am not sure, that it also strengthens core muscles.
Obviously it did not cure my ME. As I got worse I had to give it up and have forgotten the 'form' that I learned. I still remember it fondly.
Yes, tai chi is fine if you actually have the energy to do it.
Sadism - try working your way out Accident and Emergency collapsing, psyche imposed. This has to be the United Kingdom utter failure /grasp of real medicine. Ignorants to scientific findings - held in sway here in the UK by the psychiarists.How long with our history have we to tolerate.
The issue goes further than the lack of energy. Many of us have OI due to the illness (POTS, NMH etc) and tai chi for those of us who have OI can be very bad as its slow moving and standing so can be one of the worst kind of exercises for some of us.
The Tai Chi I was doing was not a traditional form, but a modern one developed specifically for health-care situations. Since it was being used for cancer patients, it may have been less vigorous than traditional Tai Chi.Hi Little Bluestem, I would like to be able to do tai chi, although my inclination would be more toward the Chen or Wu style. Tai chi is generally good advice, for most people, most of the time. Just being able to do something like tai chi would be a big improvement for me. Bye, Alex
I do see your point and agree with it in principle. However, I think one of the reasons that I remember the Tai Chi so fondly is that it was about the only thing I was doing for pleasure. I was still doing my laundry, but I had pretty much given up housekeeping and cooking. Fortunately my job paid well enough that I could afford to eat out a lot (going to restaurants where I could make two meals out of one) and buy convenience foods. My workplace had a cafeteria for weekday lunches.It would of been more practical for this patient to be doing something like hanging out her clothes on the clothes line, then doing Tai Chi (that is even if she is capable of hanging out clothes).
I went to a local support group meeting for Fibro and ME/CFS where the main speaker for the evening was a woman demonstrating Tai Chi. I looked on in horror as she stood tall, brought her arms overhead and proceeded to stretch them at all sorts of angles and also performed all sorts of postures (for lack of a better word.) I could picture myself getting very ill after only minutes of duplicating her movements. I knew this woman; she had a diagnosis of CFS. The specialist involved with this group looked on. It was one of those surreal experiences whereby I wondered what were they thinking when they booked this speaker?
My Tai Chi teacher said my energy wasnt flowing right...and blocked (causing the knots and then pain due to that). I ended up going to energy healing sessions with an International well known powerful Master (Tai Chi.. Kung Fu) who still couldnt clear my energy so it would be ok. (that guy was so powerful he used to give energy demostrations with getting you or someone else to lean right backwards so one was just balancing on the floor on the back of ones heels.. an impossible gravity defying thing and just hold them there using energy alone not touching them physically.. anyway he couldnt fix my issue either).
http://www.ncbi.nlm.nih.gov/pubmed/22649476Effectiveness of a tai-chi training and detraining on functional capacity, symptomatology and psychological outcomes in women with fibromyalgia.
Abstract
Background. The purpose was to analyze the effects ofTai-Chitraining in women withfibromyalgia(FM). Methods. Thirty-two women with FM (mean age, 51.4 ± 6.8 years) attended toTai-Chiintervention 3 sessions weekly for 28 weeks. The outcome measures were: tenderness, body composition, functional capacity and psychological outcomes (Fibromyalgiaimpact questionnaire (FIQ), Short Form Health Survey 36 (SF-36)). Results. Patients showed improvements on pain threshold, total number of tender points and algometer score (all P < 0.001). The intervention was effective on 6-min walk (P = 0.006), back scratch (P = 0.002), handgrip strength (P = 0.006), chair stand, chair sit & reach, 8 feet up & go and blind flamingo tests (all P < 0.001).Tai-Chigroup improved the FIQ total score (P < 0.001) and six subscales: stiffness (P = 0.005), pain, fatigue, morning tiredness, anxiety, and depression (all P < 0.001). The intervention was also effective in six SF-36 subscales: bodily pain (P = 0.003), vitality (P = 0.018), physical functioning, physical role, general health, and mental health (all P < 0.001). Conclusions. A 28-weekTai-Chiintervention showed improvements on pain, functional capacity, symptomatology and psychological outcomes in female FM patients.: