Ember
Senior Member
- Messages
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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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The presentation was good, the info less so. They were portraying ME/CFS (as they called it, rather than ME) as one of a number of diseases that are far more common than people think, and from this followed a number of additional errors.
Where do they get the idea that lots of money is being spent researching our illness? More now, than probably ever, but compared to other illnesses that are not as impactful on people, the money is a pittance!