- Messages
- 11
- Location
- Cincinnati, Ohio USA
Hi everyone -- I am new to ME/CFS. So, my symptoms began the first week of April 2012, going on to 6 months ago. First off, I suffer from severe anxiety and depression and was hospitalized for a nervous breakdown in March 2012. Right after I get out of the hospital, I start experiencing fatigue that I've never even imagined was possible for a human to experience. I was literally laying down all day or slumped over in a chair with not enough energy to even sit up straight. I actually wondered after weeks of extreme fatigue if I was dying. I went to the doctor and he did some blood tests to check levels of vitamins and minerals and the only thing that came back in a negative way was Vit. D levels from the 25-hydroxy whatever it's called test. It was 4.5 ng/ml in mid-April 2012. I was told to start taking 3,000 IU Vit. D3 everyday and I actually increased it to 5,000 IU/day. I was retested in July and Vit D levels were up to 36 ng/ml. Much better. Fatigue has stuck around, however not to the levels of April. Some slight improvement in fatigue, however some days are much worse than other days. My limbs feel heavy and I have trouble working and get nausea and loss of appetite daily. Some days the nausea lasts all day long. I've have balance problems that are worse some days than other days, horrible brain fog, muscle and joint pain, and occasionally what feels like swollen lymph nodes.
I told my Psychiatrist about my symptoms and he said he thinks it may be CFS. I mentioned the CFS possibility to my PCP and he now wants me to go to a infectious disease doctor. My psych doc said he can Dx CFS. My question is, what type of doctor "usually" Dx's CFS? My geneticist also said it may be CFS as I have Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome. Is CFS the likely cause and does it typically wax and wane like this? Also, could the extreme fatigue like I had in April come back again? My fatigue varies depending on the day. Whatever it is, it isn't fun. I'm a 23 year old male too, actually 24 next month. I'm still getting days where it's hard to sit up straight because I feel fatigued and weak.
Also, want to add that I'm not working at the moment. Also, I have headaches and a lot of trouble with sleep and have not responded well to Lunesta 3 mg, Remeron, Trazodone, Rozerem to name some of the meds...
I told my Psychiatrist about my symptoms and he said he thinks it may be CFS. I mentioned the CFS possibility to my PCP and he now wants me to go to a infectious disease doctor. My psych doc said he can Dx CFS. My question is, what type of doctor "usually" Dx's CFS? My geneticist also said it may be CFS as I have Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome. Is CFS the likely cause and does it typically wax and wane like this? Also, could the extreme fatigue like I had in April come back again? My fatigue varies depending on the day. Whatever it is, it isn't fun. I'm a 23 year old male too, actually 24 next month. I'm still getting days where it's hard to sit up straight because I feel fatigued and weak.
Also, want to add that I'm not working at the moment. Also, I have headaches and a lot of trouble with sleep and have not responded well to Lunesta 3 mg, Remeron, Trazodone, Rozerem to name some of the meds...