I think the article was rather pre-emptive and poor which is a shame.
It's a press release. Not an article.
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I think the article was rather pre-emptive and poor which is a shame.
It's a press release. Not an article.
The conference?A press release on behalf of/written by whom?
The conference?
Business as usual. No news as always. It is the same bla bla i hear for more then a decade now. I hope a real breakthrough will come up within 3 years but i don't think that is going to happen in a hundred years... sorry for my skepticism.
Justin,
I had posted earlier, in response to the comment from Frank Ruscetti about private funding of ME research, about three (3) private research initiatives that I would feel comfortable donating to. I was hoping that someone would make a comment about others.
Can you provide a link to where people can find more information about the Mt. Sinai project?
Wally
1. Names of Foundations Caron and Derek Enlander Foundation860 Fifth Avenue
2. Contact information Derek Enlander MD
New York NY 10065
3. Who to make check out to.Medical Research in these specific areas
Derek Enlander MD notation Caron and Derek Enlander Foundation
4. What is each foundation supporting?
Cancer research
ME/CFS research especially treatment of Chronic Fatigue Syndrome
Fibromyalgia cause and treatment
Lymes Disease
Want to know specifically where the money is going and how it will be used..as specified above
==============================================
1. Names of Foundations
Mount Sinai ME/CFS Center
Mount Sinai School of Medicine
c/o Derek Enlander MD
860 Fifth Avenue
New York NY 10065
3. Who to make check out to.Medical Research in these specific areas
Mount Sinai ME/CFS Center
4. What is each foundation supporting?
ME/CFS research especially treatment of Chronic Fatigue Syndrome
From Lipkin study there is big difference between patients up to 3 years and long term. How to reset immune system. Different cytokines can be shut down by many existing drugs ( arthritis drugs, diamox (anti-altitude sickeness)(Dr. M) also abx, antidepressant nortryptiline (dr P)
.
Interesting. Do you have any more info on what was said about diamox ? For awhile back ...... 20+ years ago. Cheney had just about everyone on it for head pressure/headaches and other neuro stuff i don't remember any more. Bell used it as well.
I had a nasty reaction to LP and went on it. That and IV fluids several times a week for a couple years did more for me than anything else I have ever tried. ( was on the diamox longer, couldn't keep getting fluids, insurance and different dr. ) Got me able to do more than lay absolutely flat and straight in the dark. Got me up a few notches. A turning point.
I went off it when I wanted to give florinef a try. ( diamox is contraindicated ) diamox was the hardest med I ever had to wean off of. My current dr. said he didn't want me ever back on it. But sometimes I do think about it.
Because of how horrible it was to go off of it. Not an ME doc. A rheumy academic I have been teaching.may i ask why did your current doc say never diamox and is she or he an ME doc?
You got the link to that ebay product?Mount Sinai ME CFS Center conference (NOV 2013) DVD video discs of the talks are now available on Ebay..... search Sinai CFS conference 2013....( $8 each ; $25 the set of 5)
Talks approx 40 mins each are by Eric Schadt ( genetics if ME CFS), Dan Peterson (Treatment using Vistide and other modes); Nancy Klimas (new implications in Immunology); Judy Miklovits ( Followup on the XMRV debacle); Derek Enlander ( the Mount Sinai Post Exertion Study and new developments in Treatment)
You got the link to that ebay product?