Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Great! Are there any details as to what time and which building?Nancy Klimas, Dan Peterson, Eric Schadt, Judy Mikovits and Derek Enlander will speak
Dr Enlander will chair the meeting at Mount Sinai in New York
I hope this will be webcast.
I would love to attend and try to report back here.
I will try to be there, probably with my parents. It will be nice to meet you and hopefully some others from PR, finally. My Mom came back from the last one and asked me if I had heard of Phoenix Rising which one of the patients had recommended.I would love to attend and try to report back here.
Nancy Klimas, Dan Peterson, Eric Schadt, Judy Mikovits and Derek Enlander will speak
Dr Enlander will chair the meeting at Mount Sinai in New York
ME CFS Conference 2013
ME CFS Center, Mount Sinai School of Medicine
New York
November 20th 11am
Academy of Medicine
1215 Fifth Avenue
New York NY
Registration fee : Physicians and Researchers $150
Patients $50
send registration fee to www.paypal.com account denlander@aol.com
signify name(s) of the registrant(s) in the Note section
OR send check to
ME CFS Conference,
c/o Derek Enlander MD,
860 Fifth Avenue
New York NY 10065
============================================
11.00 opening Chairman Derek Enlander
11.10 Eric Schadt Genetics The Power of the gene in diagnosis and treatment
11.45 questions
11.50 Dan Peterson, Simmaron Foundation, Reno , Nevada New approaches in ME CFS Therapy
12..25 questions
12.30 Lunch
1.15 Judy Mikovits Virology ... Faux Pas and New Concepts
1.40 questions
1.45 Derek Enlander Diagnosis & Therapy from Ramsey 1955 to VanKonynenberg Methylation cycle 2011 to Mello and Retuximab 2013
2.25 questions
2.30 Nancy Klimas, Institute for Neuroimmune Research, Nova Southeastern, Ft. Lauderdale, Fl New Thoughts on Immunology in ME CFS
3.10 questions
3.15 Panel discussion.... all speakers plus Christian Becker(Sinai PEM Study) and Frank Rusetti (NIH)
3.55 sum up Derek Enlander
4.00 conference end
It would be great to have some coverage of this event...if anybody who's attending would like to tweet it for PR, or write up an article, please contact me to discuss the options...
Edit: just noticed Nielk and Gabby's posts, sorry...well anyway, the more the merrier...
Can anyone comment more on this conference? I am interested in going if I can make the trip work (or maybe sending a family member). Is it worthwhile for patients? Is there a link to the talks from last year?