I think it's also important in this whole chronic Lyme/late stage etc debate to remember the vast amount of patients who have NEVER had their Lyme treated and end up like me chronically ill for 20 years or more. I was never even offered a test or had it thought of by any NHS doctor. So I could never have had the chance to have the usual short course of antibiotics to get better.
Patients like me make absolute sense in the MSIDS arena - we have had the disease for so many years, undiagnosed and untreated that our systems have gone haywire and start to shut down. I myself am beginning to experience more and more symtpoms now and more and more systems are going wrong. My immune system is in a mess from having untreated infections for so long, so that other things that healthy people deal with like metals, molds etc start to pose a real threat to my health.
I'm so sick of people going on about people with late stage Lyme are all mad because they will have got better from their initial treatment - what if you have been failed utterly by the medical establishment who never even tested you in the first place - those of us who have never been offered treatment are left to get sicker and sicker. This is my reality.
Patients like me make absolute sense in the MSIDS arena - we have had the disease for so many years, undiagnosed and untreated that our systems have gone haywire and start to shut down. I myself am beginning to experience more and more symtpoms now and more and more systems are going wrong. My immune system is in a mess from having untreated infections for so long, so that other things that healthy people deal with like metals, molds etc start to pose a real threat to my health.
I'm so sick of people going on about people with late stage Lyme are all mad because they will have got better from their initial treatment - what if you have been failed utterly by the medical establishment who never even tested you in the first place - those of us who have never been offered treatment are left to get sicker and sicker. This is my reality.