Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Sorry if this is already posted, but boy this is an excellent article.
http://poultonblog.dailymail.co.uk/...d-than-multiple-sclerosis.html?forumid=331851
Sorry if this is already posted, but boy this is an excellent article.
http://poultonblog.dailymail.co.uk/...d-than-multiple-sclerosis.html?forumid=331851
Thanks - that was a good thing to wake up to this morning. I've left an appreciative comment.Sorry if this is already posted, but boy this is an excellent article.
http://poultonblog.dailymail.co.uk/...d-than-multiple-sclerosis.html?forumid=331851
It just occur to me something, I read somewhere about studies of putting ME patients in coma/deep sleep state and they were still sick after they woke up. Is this correct? So if we test the ME people while comatose and the inflammation and immune markers are still off, would disprove the Psychobabble once and for all right? It cannot be psychological while you are unable to feel/think.
It just occur to me something, I read somewhere about studies of putting ME patients in coma/deep sleep state and they were still sick after they woke up. Is this correct? So if we test the ME people while comatose and the inflammation and immune markers are still off, would disprove the Psychobabble once and for all right? It cannot be psychological while you are unable to feel/think.
It just occur to me something, I read somewhere about studies of putting ME patients in coma/deep sleep state and they were still sick after they woke up. Is this correct? So if we test the ME people while comatose and the inflammation and immune markers are still off, would disprove the Psychobabble once and for all right? It cannot be psychological while you are unable to feel/think.
I am glad you accept ME/CFS is a serious illness which deserves more research attention. Viral infection is only one of many avenues.
Overall, the comments criticizing your blogs are not suggesting a "refusal to accept that a psychiatric illness is a real illness", but rather, rejecting the notion that ME/CFS is a primary psychiatric illness. This is not the same as downplaying or stigmatizing mental illness in general, and a common misconception about patients' objections to mental explanations. And if a few patients view mental illness as less real or serious than physical illness, they probably picked it up from health care professionals (and society at large) who have frequently downplayed their ME/CFS for exactly the same reason.
Mental explanations have been presumed and explored for decades, with no convincing evidence for primary psychiatric illness. Even Wessely does not claim that ME/CFS is a purely psychiatric illness either.
Posted by: biophile | 19 September 2012 at 05:32 PM
Biophile, sleep therapy has been tested. A hospital in the UK specialized in it. The name Charing Cross comes to mind, but I am not sure of that. It didn't work anyway. What amazes me is how fast so many jump to presumptions of psychosomatic causes before they even have the evidence.
Thats it Alex, a cfs moment called a brain fart, lol