Large Donner
Senior Member
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- 866
Just be careful because so often these clinics make people worse and then discard them.
Yes.
Also they have pages of crap that they can add to your medical file or verbalize to other health care workers that can prevent you from receiving adequate care in the future or more tests. They can even prejudiced your own GP against you. They even make peoples friends and families doubt them.
One more thing, I just could not interact with any service if I had the slightest feeling that they didn't understand how biomedical an illness ME is. That would be because I refuse to allow them to turn my bum on a seat into financing their clinic.
Many of them have the philosophy, "anxiety etc is just as physical an illness as physical diseases, so people are experiencing physical symptoms in that sense, but we wont engage in discussion with the patients over the nature of the cause because it will prevent them from following our instructions if they suspect it."
Im really sorry but.........
Apparently the body ‘realises’ it can now stop and deal with the years of stress and trauma so it totally breaks down. It then becomes unwilling to get better, as it has a ‘memory’ of what came before – to put it simply, it thinks that if it gets better, it will be put back in the original, stressful situation. You almost need to re-train it to understand that the stressful situation/danger/threat is no longer there and it is safe to start functioning again.
.......is text book anxiety treatment. This tells me this clinic has no idea what ME is and there is no way they could make such statements about MS. The reason for that is the believe MS is a real physical illness and not physical manifestations of "emotional trauma or stress" that are "just as physical to the person experiencing them as other illnesses".
Naturally any clinic must be seen statistically to be a success or they will not get funding or patient money. If they continue to bluff people or even just convince them of their own flawed ideas and beliefs they continue the viscous circle.
The problem with bad clinics for ME is they are cheap for the government yet can make all sorts of unscientific dubious claims because what they produce is not put up to scrutiny, is believed uncritically by influential people and because it simply serves the purpose of the staff and the health service.
This in turn then has an effect on the community as a whole.
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