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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Next step is to figure out which test and where to get it from.
/woolly
Have you seen the CFS Roadmap? It can give you some direction.Thanks all!
@justy no harm at all, be blunt and point me in the right direction.
I'm at the bottom of a steep learning curve and don't fancy going the wrong way. Only asking here to learn.
Next step is to figure out which test and where to get it from.
/woolly
@CantThink yes but somewhat confused to which one gets the best results. Should I also look into my B12 etc while we at it.
EDIT to add: not put my full attention to it as my partner is down with a nasty flu, so on full tea and tissues support duty.
I have been tested for Lyme and it came back negative, as in there is no Lyme.
@potbatch
I have read about YFS and wonder if I can talk my GP into referring me there, I'm in Skipton.
The older, more standard tests have a very high rate of false negatives - in the neighborhood of 50% when used alone, and they only say to go for the 2nd test if the first one is positive Whereas at least one published paper indicates that the Elispot-LTT has resolved that problem, and without increasing the rate of false positives in the process.I have been tested for Lyme and it came back negative, as in there is no Lyme.
Grimbergen is great ... and there's a couple decent hotels. Hotel Abbey was the better one, though I think it's usually closed on weekends as they primarily deal with group events. And Het Fenixshof (The Phoenix Courtyard) restaurant is sublime, with a view to die for especially if it's the right season to sit outside.Might be time to visit our friends in Brussels. Ohh I see KDM is located not far from Grimbergen, which is one of my favourite beers. So something good will come out of a visit to Brussels. Oh yes it would be good to see our friends too
Dr. Akagi et al said:There has been considerable debate about both the cause and management of the condition. However, it is recognized that the cause is multifactorial and, for management to be effective, attention needs to be paid to factors maintaining the symptoms and disability [9]. Cognitive behavior therapy (CBT) has been shown to be effective either as a sole mode of therapy or in conjunction with pharmacological treatment of comorbid psychiatric disorder [10,11].
Patients selected for follow-up were: all patients referred to the Department of Psychological Medicine (DPM) between 1991 and 1997, aged between 16 and 65 at presentation, satisfied diagnostic criteria for CFS [3]/neurasthenia (F48.0, [15]) and offered CBT. When indicated, additional treatment for coexisting psychiatric disorders was also provided.
A high proportion of TG patients continued to attribute the illness to a viral cause. This finding is in keeping with that of Deale [20] from their randomized controlled trial of CBT for CFS, that physical illness attribution did not change in the treatment group. There was no significant association between causal attribution and improvement at 6 months. Important cognitive factors affecting outcome were the patients’ beliefs about the effect of exercise and activity levels on their illness.