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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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@Sasha--sorry to hear no effect. I guess you are thinking of returning it in a little while.
One thought--have you been using it once a day? You might try using it twice a day--well spaced--for a few days, just to see if that brings to the surface any effects, good and/or bad? But it does seem clear that responses vary, though I think I glimpse some patterns... I hope. Are you still finding it very uncomfortable, even painful?
@Sasha--the more I think about this stuff, the more I think that the 810 is a better unit for us than the 633--sorry!
@Sasha, hope that stuff helps you--OI is one of my central symptoms too. Don't want to complicate things, but do you know Julia Newton's (well, she and her great group) little paper on "home orthostatic training", PMID 19912315 ? I did it for a while, and it did help, though did not make the problem disappear. Good luck!
I'm sending the 633 back today for a refund and have just started on drug therapy for my OI so don't want to complicate things by throwing a new intervention into the mix, but if Vielight are still developing things, I'll keep an eye on this.
@esecallum--good luck with your projects--I have no idea what the power ratings of your things would work out to, but the ratings given to the Vielights are in the range of 5-10 mW. I have found that the Vielights help with both nasal stuffiness and nasal allergic responses to pollen.
for those trying to get light through the skull i suggest you try these red led beads and direct the red light on to the roof of the mouth and you will see the red light in your eyes!
Is that safe?
well all i can say i have done it about 6 times for at least 30 minutes and i am still alive and fully compos mentis...
I'm worried about your eyes, especially!
well i put a 1 watt red led running at about 150 milliamps with the electrical connections encased in glue in my mouth and i could see the glow of the red light with my eyes closed.
my eyes are fine.
it may interest you to know as i turned the led around in my mouth in certain positions the red glow i could see in my eyes was much stronger as if there were pathways to the optic nerve or maybe certain areas of the mouth roof bone are thinner at some points
you may research that red light has been used to regain sight in mice that were deliberately blinded.
you may google it.
I'm not knowledgeable, only nervous!
I thought I'd read somewhere about the dangers of too high a power output with these things - but maybe it was a laser version. Perhaps others can remember.
You are correct.i would NEVER put lasers in my eye.