I am going to start taking LDN. Having read almost everything I can about it on the web, I've decided it is worth risking. I am VERY sensitive to meds and extremely susceptible to insomnia so I am scared.I am going to start ridiculously low and work my way up slowly (if possible).
The thing that worries me most is the loss of hope if this does not work.
Anyone else trying this soon?
DD
Hi DDog- I'm on my 5th week for FM/ME/CFS plus I have Hashi's. Don't be scared. My doctor and I are following the guideline dosing sheet put out by the LDN Research Trust which recommends ME/CFS/Hashimoto's patients to start at .5 and increase every week by .5 till you get to 4.5 (or less if one feels better).
I'm at 2.5.
LDN has been very interesting. The first night I woke up feeling like I had the flu but it went away by morning. The 2nd night I woke up real early and was wired, which concerned me because I have sleep issues too. But that only lasted one night and since then I sleep like a log!
The following week or two I felt kind of weird and spacey. One day I had double vision, which scared me but I wasn't about to quit unless things got worse. It went away.
Benefits so far:
Huge pain reduction (FM) - When I started LDN I had extremely painful tendonitis plus bad lower back and morning stiffness. I'd been on prescription strength Alieve for 6 months, which hardly touched it, but now rarely even have to take it.
I've also experienced major improvement in cognitive function and also in mood. I had started to become depressed with this relapse but LDN really leveled out my emotions and gives me a sense of calm.
I hadn't been to church in months but have been able to go.
My fatigue is still bad and I'm still lying down most of the time, but there's no way I'm giving this up. They say to be patient.
You have nothing to lose by trying it. It's a very safe drug.
Best wishes!
OH, and one more benefit - it has helped to curb my appetite - which is a good thing for me.