SpecialK82
Ohio, USA
- Messages
- 993
- Location
- Ohio, USA
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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How long has it been since the study came out?
It was late - but I'm still glad to see it.
Should we give her a cookie?
There is usually no particular rush in replying to medical journals.If it takes her this long to write a simple letter she needs to look for another job. I recommend McDonald's.
Mindy Kitei says it best in her recent blog response to Jennifer Spotila:
"Jennifer Spotila, even if I had been on hallucinogens, I couldn’t have said something as unhelpful as what McCleary told CNN."
Also if it was so simple to write such a letter, given how many people are annoyed by it, why weren't more people doing it?
So posts generally on patient forums are of low quality?/patients should stay out of discussions because they don't have the brain power?Err because we have a debilitating neuro-immune disease which makes even the most simple of tasks nigh-on-impossible?
So then if people want the CAA replaced, it will be run by healthy people?McCleary on the other hand is 100% healthy.