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http://www.cortjohnson.org/blog/201...iations-video-series-dr-de-meirleir-on-sleep/
Interesting what KDM says about sleep and how infections and immune system disrupt our ability to sleep. I also thnk something gets injured/broken from the initial infection too. At the end of the blog he mentiones antiseizure meds he finds help people to sleep and then there is a dot point with neurontin/gabapentine, so dont know if this is what KDM uses for sleep issues. It would be good if a kdm patient could clarify this.
I havent found neurontin helping me for sleep but does help me some with pain at night and thats 600mg before bed. Lyrica i find more calming but i have only use 150mg, maybe a higher dose would work but cant afford big doses. MAybe kdm uses different antiseizure meds?? I find i still need a low dose benzo or z drug to initiate sleep and then add mostly an antihistimine or if sleep has been crappy i will swap the antihistamine for a low dose of seroquel 25-50mg. Seroquel is a good sleep med i have found but on its own it sort of hard to get to sleep and when asleep u dont feel like your going deep enough to sleep but add a small dose of benzo and sleep is usually very good. Sometimes i will use mirtazapine or trazadone instead but they can be hit and miss.
At the end of the day i hate having to medicate sleep but its the only thing i can do to sleep. bad sleep for me drops my ability to function right down to lying in bed not sleeping all day and feeling like crap with my head about to explode. It would be nice to just naturally feel sleepy at night and put my head on the pillow and drift off to sleep for 8 hours, now im dreaming, lol.
Interesting what KDM says about sleep and how infections and immune system disrupt our ability to sleep. I also thnk something gets injured/broken from the initial infection too. At the end of the blog he mentiones antiseizure meds he finds help people to sleep and then there is a dot point with neurontin/gabapentine, so dont know if this is what KDM uses for sleep issues. It would be good if a kdm patient could clarify this.
I havent found neurontin helping me for sleep but does help me some with pain at night and thats 600mg before bed. Lyrica i find more calming but i have only use 150mg, maybe a higher dose would work but cant afford big doses. MAybe kdm uses different antiseizure meds?? I find i still need a low dose benzo or z drug to initiate sleep and then add mostly an antihistimine or if sleep has been crappy i will swap the antihistamine for a low dose of seroquel 25-50mg. Seroquel is a good sleep med i have found but on its own it sort of hard to get to sleep and when asleep u dont feel like your going deep enough to sleep but add a small dose of benzo and sleep is usually very good. Sometimes i will use mirtazapine or trazadone instead but they can be hit and miss.
At the end of the day i hate having to medicate sleep but its the only thing i can do to sleep. bad sleep for me drops my ability to function right down to lying in bed not sleeping all day and feeling like crap with my head about to explode. It would be nice to just naturally feel sleepy at night and put my head on the pillow and drift off to sleep for 8 hours, now im dreaming, lol.