Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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My food/activity/symptoms journal has been very useful for identifying problem foods and activities, and several things that helped me (once I figured out what was helping). Human memory is too infallible for this task.I think that I should keep a diary to see if I can identify any patterns that might help me to pace better.
Nothing specific, just paper to write stuff down on. My initial notes were on random small pieces of paper; then I moved to old computer printout paper, which is held on a clipboard. Sadly, this results in the pages getting quite dirty, so it's really not the easiest system for looking back over records. Also, I used shorthand that made sense at the time, but now is a mystery. However, if I made the system too complex and thus inconvenient, I wouldn't use it. So, figure out what works for you.Do you use anything specific, or just a daily journal with extra space for notes?
The name “myalgic encephalomyelitis” essentially means “muscle pain related to central nervous system inflammation” and many efforts to find diagnostic biomarkers have focused on one or more aspects of neuroinflammation, from periphery to brain.Is this actually a symptom of myalgic encephalomyelitis?