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Hi everyone,
Today I went to the appointment with my neurologist to receive the results of the dysautonomia testing. I have to say that now I have moderate CFS, while last year I was severe and my POTS was over the roof. Back then, my blood pressure was mostly 8/4 or 7/3 and I could barely stand up. It got better with adrenal support, but I still get very dizzy, specially when I've been standing up or walking for 10 minutes or so. However, my POTS is way better, and it fluctuates between being normal and having a few crisis.
So when I went to receive the results, the neurologist told me that I don't have any dysautonomia, OI or POTS. But she said that it was found that I have presyncope, which happened upon being stood up for 7 minutes and, at that moment, they had to stop the test.
I'm very confused because they think orthostatic intolerance and POTS only happen when you get the symptoms within the first three minutes of the test, but I wonder what happens when it does after that time mark. She has given me Florinef and that's it.
Also I'd like to know if any of you have been diagnosed with presyncope and if you found any successful treatments.
Thank you in advance!
Today I went to the appointment with my neurologist to receive the results of the dysautonomia testing. I have to say that now I have moderate CFS, while last year I was severe and my POTS was over the roof. Back then, my blood pressure was mostly 8/4 or 7/3 and I could barely stand up. It got better with adrenal support, but I still get very dizzy, specially when I've been standing up or walking for 10 minutes or so. However, my POTS is way better, and it fluctuates between being normal and having a few crisis.
So when I went to receive the results, the neurologist told me that I don't have any dysautonomia, OI or POTS. But she said that it was found that I have presyncope, which happened upon being stood up for 7 minutes and, at that moment, they had to stop the test.
I'm very confused because they think orthostatic intolerance and POTS only happen when you get the symptoms within the first three minutes of the test, but I wonder what happens when it does after that time mark. She has given me Florinef and that's it.
Also I'd like to know if any of you have been diagnosed with presyncope and if you found any successful treatments.
Thank you in advance!