I think you all might find this interesting....a .org site...dysautonomia information network
http://www.dinet.org/what_causes_pots.htm
and wiki even makes mention of EDS and POTS as associated diseases
http://en.wikipedia.org/wiki/Postural_orthostatic_tachycardia_syndrome
and here too
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2847865/
And here from the mecfs themselves re EDS, hypermobility and Dysautonomia
http://www.mecfs-vic.org.au/sites/www.mecfs-vic.org.au/files/Article-2010Haavisto-Joint.pdf
Not sure what the big deal is about accepting that its possible for them to be linked and is true in a lot of people who have both or more...and they do....an awful lot that I know of....but not everybody of course just like other diseases for example I have hashimoto's, which is linked to all sorts of other diseases and I have a fair few of them but it doesnt mean everybody will get them all or any of them for that matter, but that doesnt take away from the fact that those other diseases are linked or associated. I dont believe allyson is saying that
everyone with ME or POTS or anything else has EDS....just that it's possible for some. Why not just think about it, disagree if you feel not relevant and move on? This thread can actually help a lot of people to maybe ask the specialists and/or get the tests if found to be a candidate due to symptoms/other diseases and actually find out if it applies to them if they feel it rings true. My two cents
Hi Thanks forthe helpful links and input Newearth
sums it up pretty well I think so hopefully we con move on to productive discussion
Janet kindly sent this - for once the intro does not descirbe EDS as being characterised by joint hypermobllity which is progress.
2013;2013:764659. doi: 10.1155/2013/764659. Epub 2013 May 16.
Ehlers Danlos Syndrome: An Unusual Presentation You Need to Know about.
Karaa A, Stoler JM.
Source
Boston Children's Hospital, Harvard Medical School, Boston, MA 02115-5724, USA ; Boston Children's Hospital, Genetics Division, Hunnewell 536, 300 Longwood Avenue, Boston, MA 02115, USA.
... Abstract
The Ehlers Danlos syndromes (EDS) comprise a group of connective tissue disorders characterized by tissue fragility of the skin, ligaments, blood vessels and internal organs.
Variable degrees of clinical severity and organ involvement are due to the molecular and biochemical heterogeneity of this group of disorders and have led to classification into well-characterized subtypes that are extending with the discovery of new genes and overlapping syndrome. Types include classical EDS (EDS I/II), hypermobility EDS (EDS III), vascular EDS (EDS IV), kyphoscoliosis EDS (EDS VI), arthrochalasia (EDS VIIA, B) and Dermatospraxis (EDS VIIC).
Even to the well trained professional, the diagnosis of EDS remains a challenge due to overlapping symptoms and cases can remain without a well-defined classification. Life altering complications of this group of disorders include vascular and hollow organ rupture and ligamentous laxity leading to chronic dislocation with ensuing pain and long term disability. Patients initially present to the general practitioner who is expected to recognize the symptoms of EDS and to proceed with appropriate referral for definitive diagnosis and management to prevent devastating complications. In this paper, we describe a male with classical EDS complicated by devastating vascular and orthopedic events