I was diagnosed with brainstem compression -Chiari 1 in 2006 and Fibro in 2007 and eds in 2008, and now 2013 just had Mayo testing and they say orth inance? 2006-2008 was horrendous, with dizzy, pain, blurry vision, almost passing out, fatigue and about 30 more symptoms. I started on flexeril, hydrocodone, and gabapentin and P/t which help a little, and basically adjusted my life to doing "nothing" no work, no household chores, a lot of laying down. I did have low ferritin and iron(anemia) and took me 2 years on iron to get those back to normal range. My doctor I had then, refused to test me for Vit D defiency when I asked her that I thought I had it. So, I went to another doc, who tested me and yes,! I did have it. I take Vit d and feel much better taking it, getting that back up to normal levels. From 2009 to 2012 I pretty much "adapted" to my life, and was in pain and fatigued a lot, but used to it. but then in 2012 Ihad an injury(concussion to my head/neck) Could this have caused my symptoms to worsen? Since the accident, My adrenaline is out of control(starts with abdominal pain, feeling hot/cold, sweaty, clammy, tremors/shaking, anxiety/terror. My blood pressure has been crashing a lot, twice a week to 70/40, before the accident, it only happend once or twice a year. My pain and fatigue has increased(just shaing someone's hand is enough to make me cry, or if my dog steps on my foot) I have NO doctor for eds, or any of my issues. The doctor who diganosed me with eds in 2008 referred me to come back to my State and see a PCP. That did not work, I cant find any doctor who even knows these issues. I dont know how I found Mayo, must have googled my symptoms, but at least, maybe they can help point me to help. No one helped me with fibro either, I think tho, I have cfs, from reading info at this web . I also got diagnosed in 2009 with diabetes 2. My mom was diagnosed with orthostatic intolerance, diabetes, I think she also has the eds if I do, and cfs. Her bp went down to 60/40 and she had to go to ER intensive care for 4 days. and get 3 bags of blood and 3 fluid, And of course her diabetes went nuts/out of control. Does this run ion families/hereditary? worried about my 2 kids. Anyone that has tips/help for me? how to deal with eds/cfs symptpoms. I am at my wits end.I just want to be as healthy as normal as what I can be. I want my life back.