Allyson
Senior Member
- Messages
- 1,684
- Location
- Australia, Melbourne
Hi All,
I posted a thread on this medical theory which was conveyed to me by a professor of medicine at a one of Australia's highest-ranking university hospitals. He is also an expert in OI/POTS so he knows his material.
I originally posted it in miscellaneous section but it has had over 12,000 views in under 3 months and a lot of positive reponses as people compare their symptoms and find they often match.
So I am posting the link here for those who may have missed it and would welcome comments or feedback - if they are the same disease (as seems to be the case for some of us at least) we could combine resources and numbers to double our chances of getting research and cure.
The symptom overlap is too staggering to be coincindental.
http://forums.phoenixrising.me/index.php?threads/is-me-due-to-ehlers-danlos-syndrome-stretchy-veins.20351/
Many thanks to all who have responded.
I posted a thread on this medical theory which was conveyed to me by a professor of medicine at a one of Australia's highest-ranking university hospitals. He is also an expert in OI/POTS so he knows his material.
I originally posted it in miscellaneous section but it has had over 12,000 views in under 3 months and a lot of positive reponses as people compare their symptoms and find they often match.
So I am posting the link here for those who may have missed it and would welcome comments or feedback - if they are the same disease (as seems to be the case for some of us at least) we could combine resources and numbers to double our chances of getting research and cure.
The symptom overlap is too staggering to be coincindental.
http://forums.phoenixrising.me/index.php?threads/is-me-due-to-ehlers-danlos-syndrome-stretchy-veins.20351/
Many thanks to all who have responded.