JasonPerth
Senior Member
- Messages
- 126
I dont think ive seen this one posted.
This is a study from ECU - Perth Australia.
I personally found it extremely hard to find and only randomly came across the Research when searching for nearby studies in my City, and then came across this link and made contact.
I then became patient #1 of 14. With 14 controls.
I hope they have got the numbers. Nobody here knew about it because it was Funded by the UK ME. So even Emerge Australia didnt know about it to make contact with patients registered. I advised them to contact Emerge to get more people.
Regarding the research, im not smart enough to know the exact thing they are looking for, probably another small biomarker and difference between ME and Controls
As you can see from the attached image, my leg was strapped to a plank and straps with electrodes where attached to a mucle opposite my calf, they then had me to vertical pulls with my right foot against the strap to activate the Muscle at 25% 50% 75% 100%. They then had me follow a mountain line on the screen, where i could see the pressure i was using and had to follow the line/up the pressure to as close as i could to the moving line, up and then down a few times.
I dont think it caused me PEM. I think what caused me more issue was the drive too and from as i am mostly bedridden besides a drive to the doctor every 2 months that im slowly struggling more and more to attend , they did offer me a Taxi.
https://www.ecu.edu.au/newsroom/art...new-technology-to-investigate-chronic-fatigue
This is a study from ECU - Perth Australia.
I personally found it extremely hard to find and only randomly came across the Research when searching for nearby studies in my City, and then came across this link and made contact.
I then became patient #1 of 14. With 14 controls.
I hope they have got the numbers. Nobody here knew about it because it was Funded by the UK ME. So even Emerge Australia didnt know about it to make contact with patients registered. I advised them to contact Emerge to get more people.
Regarding the research, im not smart enough to know the exact thing they are looking for, probably another small biomarker and difference between ME and Controls
As you can see from the attached image, my leg was strapped to a plank and straps with electrodes where attached to a mucle opposite my calf, they then had me to vertical pulls with my right foot against the strap to activate the Muscle at 25% 50% 75% 100%. They then had me follow a mountain line on the screen, where i could see the pressure i was using and had to follow the line/up the pressure to as close as i could to the moving line, up and then down a few times.
I dont think it caused me PEM. I think what caused me more issue was the drive too and from as i am mostly bedridden besides a drive to the doctor every 2 months that im slowly struggling more and more to attend , they did offer me a Taxi.
https://www.ecu.edu.au/newsroom/art...new-technology-to-investigate-chronic-fatigue