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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I don't have a little red tricycle, but I suppose I could roll around the halls in my little red mobility scooter until I see dead peopleSitting with bated breath until you've done your first IV.....so hoping it goes well for you, I'll pass on the hotel though!!!
Hi @Valentijn
Actually I just remembered that I was told to treat for Lyme with 2 supplements that I can't remember. Duh ! Having a brain would definitely help my prognosis.
Tx. X
He prescribes lots of water (2L per day) and low sugar. But nothing more complicated than that. Also probiotics.I was just wondering if kdm recommends a diet too. I've heard over the years that llmds in the us are recommending the paleo diet. I was just wondering what he's seeing.
Banderol / samento ?
He prescribes lots of water (2L per day) and low sugar. But nothing more complicated than that. Also probiotics.
Something he prescribed, and insurance actually paid for, is digestive enzymes. I still avoid tempting fate for the most part, but I can now eat foods that used to make me swell up, if I take an enzyme before the meal. But I do get diarrhea from the bad foods still, so I'm not eating wheat or eggs on a daily basis or anythingSure avoiding my triggers stopped the reaction I get from eating these but it appears I may benefit from treating pathogens.
Did you try IV antibiotics? Those might be a lot easier on the gut. I don't know what he tries if no antibiotics are tolerated.So far even standard antibiotic or parasite treatments make me feel horrible tho. I've had to stop multiple treatments because I couldn't function or I got the runs non stop.
Do you know what he recommends for those who can't tolerate the treatments ? I was thinking something to help detox maybe ?
Something he prescribed, and insurance actually paid for, is digestive enzymes. I still avoid tempting fate for the most part, but I can now eat foods that used to make me swell up, if I take an enzyme before the meal. But I do get diarrhea from the bad foods still, so I'm not eating wheat or eggs on a daily basis or anything
Did you try IV antibiotics? Those might be a lot easier on the gut. I don't know what he tries if no antibiotics are tolerated.
@xchocoholic - Creon is the one I'm taking too.