halcyon
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What part of the mouth do these show up in?I have horrible fever blisters in my mouth.
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What part of the mouth do these show up in?I have horrible fever blisters in my mouth.
Valcyte is not the anti-herpetic for EBV. It is better for beta-herpes viruses (CMV, HHV6). Valtrex and Famvir are better for the alpha- (HSV, VZV) and gamma-herpes viruses (EBV). If EBV and fever blisters are your problem, I'm surprised your doc isn't trying the AVs believed to be more effective for those and which are safer meds than Valcyte.I'm hoping this helps me like you, Gg. I started this whole thing with Epstein-Barr virus, which is always very high. I can't remember which virus Valcyte works with or if it works with them all. Every month at the time of my cycle, I have horrible fever blisters in my mouth. I can't remember if Valcyte helps that, but I will look it up. Tomorrow I see my CFS doctor and I will tell him that I'm joining in. He's very tolerant and open-minded and will allow me to try anything and I have these two bottles of Valcyte here. If I continue at such a small dose it will last for two and a half years.
My blood pressure is always 90/54. Incredibly low and sometimes it's 80/54. I've had so much fog lately and fatigue and I was telling Z tonight that I just can't go on like this. I've been spending half my day in bed. Of course, it's been way worse since the surgery.
Fingers crossed!! I'm so glad you're feeling better, Ginger- you deserve it.
OTOH, if the main effect of Valcyte in ME/CFS is it's immune modulating properties, then it probably doesn't matter which herpesviruses are giving you trouble.
From what you said above, it sounds like your dysautonomia is not at all under control. You probably won't feel a lot better from Valcyte if your dysautonomia is still that bad. You might want to deal with that before you use up your limited supply of Valcyte so that you can get the best effect from it.
Tagging Z, because it was a suggestion of his due to by mag being so insanely low and taurine low.
@Gingergrrl -Genova Diagnostics 'Optimal Nutritional Evaluation test.' I believe it measures all minerals and it's covered by medicare. A plus! There is an intracellular one....bloodwork, but it's $80.00.
I wanted to report that I increased to the 1/8 pill dose of Valcyte this morning and so far so good and no vertigo!
I had a bit of a relapse yesterday after giving blood for some tests. I felt very weak with significant shortness of breath even though I had drank four cups of Vitalyte in the morning prior to the test. My body does not seem to do well with blood tests any more. The most frustrating part was that I gave blood to repeat the coxsackie & echovirus panel (it was a repeat test to see if the one abnormally high titer is going up or down) and the lab messed it up.
It is still unclear if they were able to use the blood and my doctor's office is trying to correct the mix-up. I am hoping it is not too late and that I did not give all that blood for nothing. It is so hard for me to give blood and then have the lab mess it up was very frustrating!
Hi there! Congratulations on your improvement. My wife hasn't tried valcyte yet, but she also is extremely sensitive to standard med dosages, so you definitely aren't alone in this. Any advice on a decent pill splitter to make 1/32 of a pill? I have a hard enough time cutting my wife's equilibrant into 1/4 pill pieces. Thanks!
I suppose everything is relative. I wouldn't have said a Valcyte pill is large, but it may be that I'm comparing it to other pills I take, like Valtrex, which are much larger. I have trouble cutting most pills in half, much less into 32nds. I'm not sure I could even pick up a 1/32 piece of a Valcyte pill, lol! You must have delicate little fingers.@Oredogg Valcyte (the brand version) is a large pill and very sturdy so it was easy to cut into 1/32. The 1/32 size was equal to the size of a 1/4 of my Atenolol.