GreenEdge
Senior Member
- Messages
- 621
- Location
- Brisbane, Australia
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Pretty sure I have central sleep apnea but only in a crash, it goes away once I’ve recovered.
@Gingergrrl Interesting. So the p wave reflects the atrium and the QRS complex the ventricular depolarization so the shortened pr interval means the trevelling of the impulse from atrium to ventricle is faster. Ite not usually covered in intro ekg books so my knowledge is especially limited
https://www.ahajournals.org/doi/abs/10.1161/01.cir.5.5.693 they argue ite an autonomic thing and goes along with bouts of tachycardia. Maybe its not completely unrelated to pots? I only read the avatract but the article is open access if younwwnt to read while thing and see if it seems relevant
i first noticed heart symptons after i had a bug too- but was bacterial sore throat (strep viridins). Mild for me (severe for my mother) but left me with heart sensations i never gad before tbough my EKG was always normal until my dysatonomia clearly started which was caused/ triggered by a virus.
Any evisence of PACs? Either on ekg or sebsation? Thise can apparently also cause shortened PR
Besides the piors induced twchy, do you have any other symptoms relatable to heart?
Im dragging my feet reading an article thats relevant to me because discusses mortalitty and other bad events but ever since i got the 6 lead kardia (before i had a one lead)... One of my docs agreed to try to get past the gatekeepers and get me a televisit with cardio Im sure they wont answer my questions but wirth a shot. Will ask too if there something i can twke jusr intermitwntky to lower heart after load based on what im reading so far.
so update after 3 weeks of hell - the arythmia has gone. The beta blocker has lowered my HR, i'm upright for a few minutes more a day, i manged to walk downstairs and eat soup at the table
thank you, yes i saw the post, i will bear Atenolol in mind if the propranolol isn't succesful - it does seem to be helping so far, but i think the fact its quick acting might be an issue.This is really great news! I wasn't sure if you saw my initial post in this thread (post #7)? I don't need a reply but I wasn't sure if you saw what I wrote re: Atenolol vs. Propranolol (in case this is useful).
thank you, yes i saw the post, i will bear Atenolol in mind if the propranolol isn't succesful - it does seem to be helping so far, but i think the fact its quick acting might be an issue.
I have an appointment with internist soon - i'll mention the zio patch. But i think i need an echo cardiogram
i do belive its a sinus isue, mainly beasue this all got worse after doing vagus nerve stimualtion and left vagus nerve is related to sinus node
I mean Sinus node in the heart.Do you mean (nasal) sinuses or sinus heart rhythm?
Pretty sure I have central sleep apnea but only in a crash, it goes away once I’ve recovered.
I’m actually having an in home test soon but I doubt they’ll find anything and I’m not going to deliberately crash myself.
I have an appointment with internist soon - i'll mention the zio patch. But i think i need an echo cardiogram - i do belive its a sinus isue, mainly beasue this all got worse after doing vagus nerve stimualtion and left vagus nerve is related to sinus node - this is kind of scary as i'm worried that a) i did this to myself and b) have i electrocuted my heart!!!! c) how can i get the right help for a condition that probabaly no one has ever experienced before d) this may not be a worsening of ME but rather a new or atleast worsened pre-existing heart condition.
Wow that’s exactly what I did, the vagus nerve stimulation was helping the ME for sure I was crashing less and PEM was less but it did have some side effects too but everyone in the Fb group seems to be having such success with it I kept going till one day it suddenly just spiked my heart rate and it never came back down!ooh that's intersting on vagal nerve stimulation. And i was getting close to trying that for my symptatehic nervious overload. Hopefully based on your prevoius post, youve now somehow found the off switch.
i did something similar to myself not with vagus nerve but with a device whose name i'm now forgetting. its marketed as the only fda approved non drug treatment for high bllod pressure. its a device that you match your breathing to the tones- so its supposed to stimulate i guess parasympatheic nervous system. one cna presumably do itwithtoug the device but figured i'd make it simple and just get it.
well i stupidly followed the tones and continued to match my breathing even though i was getting worse and worse and more and more winded. dont' as hell know why, except that it was like a game and was determined to "win".
i really scrwed up my heart. I had to call a couple of doctors. iut gave me a type of arrhymia i never had before- primary atrial contractons. may have done more but i didn't have antying at home to measure that (I only had a one lead thing at home). One doc thought i might have made myself hyperventilate which put a strain on heart. Amusingly for lack of a better word, i spoke to the son of the inventor who is part of the company and does alot of the marekting. He said it have him an atrial arrhyhmia too and he actually had to get cardioversion at the hospital to correct the rhythym!!! Hpw can something like that be legal? I should have sued. I think it forever changed my heart becasue now when there's a stressor, i got those PACs and i had not had them previously. I had same reaction as you- did i just do this to myself??
right now i just ate- and it set off my heart symtpoms. took the 6 lead ekg and have the same 5 chianges i get when i get symptoms. But from my dysauotomia i have exaggerated postprandial reactons, so dont know if its related to that.
The zio patch is only one lead. It's only helpful in limited conditions. And if youre at all senstivie to RF, you'll be having that constantly for a month.
I mean Sinus node in the heart.
I’m so scared because if it does need correcting with cardioversion I can’t get to the hospital!
i did something similar to myself not with vagus nerve but with a device whose name i'm now forgetting.
The zio patch is only one lead. It's only helpful in limited conditions. And if youre at all senstivie to RF, you'll be having that constantly for a month.
@Gingergrrl If i don't answer all your quesitons, just let me kmow again. i've never mastered the multiquote thing... (ekgs sure, but multiquotes...)
by ""piors induced twchy" I meant "pots induced tachy"
in the article i gave the link too, in the abstract, they don't use the word "dysautonomia" or "pots" so i dont' know if they will or won't in the text. But in the abstract they do say they see people, usually women, with shorted PR interval who also get intermeittant tachycardia and then i think in the last line they hypothesize they are both from autonomic control or some such.
I think the Kardia is great. https://www.kardia.com/kardiamobile/ I am not a fan of the Zio patch. The kardia mobile now has tthree electodes and can give a six lead EKG. If you feel fluttery, you can pull it out and see the flutter for yourself
If you just ever get literally one and then goes away for days-weeks, then i see how it would be hard to catch and by wearing it for a whole month (zio) you may catch it. but really if you have one premature beat in weeks, it may not be worthwhile on those grounds (unless acoompanyied by near fainting or dizziness or something).
hyper thryoid can certainly do all sorts of things to heart rhythm. what's the hydrocortisone for?
@Gingergrrl i was using a tens at specific frequencies for VNS i think vision_blue was using something else.