adreno
PR activist
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There's nothing more important to spend money on than your health.Still, it is a lot of money.
At least I will get lots of bonus points on my credit card...
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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There's nothing more important to spend money on than your health.Still, it is a lot of money.
At least I will get lots of bonus points on my credit card...
snowathlete said: ↑
Still, it is a lot of money. At least I will get lots of bonus points on my credit card...
trains, eurostar and hotels all booked. I feel shattered having spent most of the day looking at options and arranging everything.
Congratulations Snowathlete and Justy, I am happy for both of you and praying you get some answers and a plan that gets you some improvement if not complete recovery!!!! Let us know what you think and how things progress. Nothing like first hand experience and reports.
Snow-
What Controversy is everyone talking about Dr. M being involved in?Anyway- The best of luck and I too hope it
helps in recovery.
San Diego
SanDiego#1
Snowathlete is right--it was an accusation by the National CFIDS Foundation, some years ago, about not publishing his significant research in a peer reviewed journal and thus making it available to others. Thing is, you can't just knock on the door of a journal and say, "Please publish my research--and bingo, they will publish it." He would have loved to get it published but that is up to the journal, not the author.
There is a lot of significant ME research sitting on the desks or in the files of journals -- we would all love to see it published, but journals are businesses and publish what they think will sell.
Sushi
it may be that there is some infection causing inflammation. This could be the virus from mono (EBV).
But hopefully you can get some relief from this.
GcMAF
Rather than my having to start another thread-Is anyone on this site taking Immune Globulin????
San Diego
Sushi- As always- Thanks!!!Few people will see your question here. Use the google search function (at the end of the forum listings) and find one of the other threads on this subject and add your question there. You should get more response.
Sushi
9. Mycoplasma Pneumoniae (again, wouldn’t I have had symptoms?)
. Enteroviruses (Echoviruses, Coxsackie A, B and Cpn). Maybe these would be worth testing but I don’t know much about them.