Sherlock
Boswellia for lungs and MC stabllizing
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Does anybody have observations on why a minority get high blood pressure from CFS and not the typical low BP?
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I have hypertension and tachycardia. But my BP plunges and my heart rate shoots up and gets thready when I'm upright too long - cooking is the worst activity. While my low BPs don't drop below 80 over 60 when it's dropped from 160 over 116 I can bloomin' feel it! I feel sick and dizzy if I'm upright too long and my legs swell, especially feet and ankles and I get this weird red rash around my legs. Anyone else get the rash thing?
I struggle with breathlessness and a sort of air hunger when I'm upright and moving. Does anyone else get that?
My BP is all over the place frankly and I cant get my pulse below 96 unless I lie down. Unfortunately lying down effects my breathing, so I need to be at least partially upright.
I'm on candesarten for it at the mo.
wouldn't the red color mean "not venous"?That's interesting as I always had thought the red mottling was due to the blood pooling but this says differently.
Anybody know what the deal is with BP (and HR) increasing steadily the longer I stand? It's a linear increase, nothing sudden.
In 30 mins:
BP: 127/90 --> 160/105
HR: 95 --> 123
SOC - the only thing I've found to keep from things getting nasty is I take my pulse and once it's over 130 I sit down until it drops off to 120 or less, and then have another go.Not ideal advice I know. I also find the time of day helps - I now cook mid afternoon so I can take my own sweet time over it and have stuff that goes in the oven or slow cooker. All that fancy cookin' I used to love has gone by the wayside. I know it's not always practicle but just not standing up for too long is the only thing I've come up with.
I tend to reach a low point late afternoon most days and I try to avoid upright stuff then if possible.
You probably are aware of the terms hypertensive urgency and hypertensive emergency - relating to BPs over certain levels, and the emergency being distinguished by certain symptoms. E.g., anyone experiencing visual disturbances should get to an ER. Or pain in the head, etc.If I just suddenly died.. I'd think a likely cause would be due to something with this wacked out autonomic system. I can imagine "heart attack" being in a way wrongly put onto my death certificate.. .
It seems this is the only one similar to me - me starting with sudden onset hypertension and orthostatic hypotension. Any thoughts on the mechanism? It took me over a year to get my BP back to normal, maybe two years. When I get sick, my BP is also usually up again.I have high blood pressure and severe neurally mediated hypotension that can cause major bp crashes. I know of others with ME or CFS and high bp and POTS. In these cases two separate things are going on - one causes low bp, the other high. However, the cause of the low bp is intermittent, and the cause of the high bp is more or less constant. I do not think that potential causes of high bp have ever been really researched in ME or CFS. Bye, Alex
My orthostatic hypotension (not hyper) was immediate upon standing. After a few seconds, I'd normalize. There were also a few times when, after standing still for awhile, I'd start to get nauseous as if I was going to pass out. Simply moving would normalize things.Anybody know what the deal is with BP (and HR) increasing steadily the longer I stand? It's a linear increase, nothing sudden.
In 30 mins:
BP: 127/90 --> 160/105
HR: 95 --> 123
I hope I don't sound irritating but I've gotten steadily better over my four years. But I'd never had ME symptoms, only CFS.I've read that ME can be progessive as well. As mine is progressing and as I get slowly worse I wonder if there is any evidence that this progress can halt - or even improve? I have got my head around how things are going and I am mostly at peace with it - but I can't help hoping it doesn't have to be this way.