frozenborderline
Senior Member
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have been struggling with this symptom for the past few months since my symptoms worsened. It gives me a ton of despair , because I’m a musician by trade and listening to music was my main way of passing the time and keeping myself mentally and emotionally together before this. I have found articles about the relationship between hyperacusis and chiari. I may have cci/aai and have many of the signs. I am wondering if treatment for cci will resolve this. Despite being bedridden and having no social life, the biggest blow for me is not being able to listen to music. It’s affected my mental health very badly.
I also wonder how much sensory perception and hyperacusis is related to gaba/glutamate/ion channels. I have been prescribed Ativan and it helps with the hyperacusis a decent amount but one can’t simply take Ativan all the time. I am curious about the effect of lidocaine, ketamine, xenon, lithium, and various gabaergics on this problem.
The other thing I was considering is the possible relationship btwn mcas and hyperacusis. It seems that mcas May play a role in autism which also has this sensory issue. I have many other symptoms of mcas like random rashes /itching and allergic reactions to changes in air quality. I will be experimenting with some non drowsy antihistamines and mast cell stabilizers when I can get them, and see how it affects my hyperacusis.
Oh and lastly, in reading about hyperacusis I have found that there’s a relationship between this and misophonia. Both my sister and I have misophonia to an extent although hers is more severe. I wonder if there are some uncovered genetic links here.
@Hip what do you think about the possible causes and solutions to hyperacusis
I also wonder how much sensory perception and hyperacusis is related to gaba/glutamate/ion channels. I have been prescribed Ativan and it helps with the hyperacusis a decent amount but one can’t simply take Ativan all the time. I am curious about the effect of lidocaine, ketamine, xenon, lithium, and various gabaergics on this problem.
The other thing I was considering is the possible relationship btwn mcas and hyperacusis. It seems that mcas May play a role in autism which also has this sensory issue. I have many other symptoms of mcas like random rashes /itching and allergic reactions to changes in air quality. I will be experimenting with some non drowsy antihistamines and mast cell stabilizers when I can get them, and see how it affects my hyperacusis.
Oh and lastly, in reading about hyperacusis I have found that there’s a relationship between this and misophonia. Both my sister and I have misophonia to an extent although hers is more severe. I wonder if there are some uncovered genetic links here.
@Hip what do you think about the possible causes and solutions to hyperacusis