digital dog
Senior Member
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Yes Sly it is. I am going to email them now and ask why it is a film that only ME sufferers will watch. We don't need to see it. We know the reality of ME.
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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As I posted on another thread about vfts film, I understand they want to raise funds but its quite difficult to actually see the film unless you buy the DVD, and the only people likely to do that are ME sufferers. As its trying to raise awareness this seems a bit self defeating. Isn't it time to make it available to view, free to all, say on YouTube?
I would love Louis Theroux to take on something like Voices. He would be incredible.
The one that really sticks in the the mind for me was a 3-part tv series called The Men Who Made Us Fat, a pretty thorough (and slightly shocking) telling of the story behind the whole high fructose corn syrup / 'low fat' (high sugar) -> diabetes story and the politics of how it came about. He's made a few other series and one-off films, but that was the best. Well worth watching if you get a chance. If you watch that, you'll see exactly why I think he would do a great job with the ME story. [the series appear to be on Vimeo .com - not sure if that can be seen everywhere]Its not really Theroux's thing. What has Peretti done? I wonder if we could contact him?
Im happy to write a letter if anyone thinks it is worth a try.
But my dream filmmaker for an ME project is Jacques Peretti. The saga of how we got to the place we're in, and the people behind it, is right up his street. He's brilliant at unpicking and explaining complicated stories like this.