I finally did one Mayo panel for neural autoantibodies, but it was NOT the one with NMDA unfortunately. Also doubt the stability of the sample- drawn at a busy satellite lab, then sent to the main lab, then sent on to Mayo. They take al ong time to process the blood at the busy satellite lab, and just wonder if it was cooled appropriately etc.
I got a bunc of symptoms with a herpes infection. still dont' know if HSV1 or zoster, but I think the former. Produces a state of constant sympatetic overdrive, peppered with more intense attacks that I think could give me a storke (think very high blood pressure, pounding head, tachycardia.). Also at night, for a lack of a better descritpion "head zaps", every time i fall asleep am awakened with what feels like electicity slamming into my head. 30 times a night. Usually a bout of those will last 6 weeks, every single night in a row. is gruesome. Always comes when i get a herpes recurrence. but the blisters don't break any more, they just fade away and sometimes don't show at all (but get the prodrome). the antivirals get me too sick to take them, but i think did help when i tried.
incidentally, this was not i don't tink the start of my CFS. I 've had disabling fatigue for years. this was a "bonus" picked up i think from a hematologists stethescope- that was one of the sites of my first outbreak- there and forehead. exactly where she places sthethescope. I was going there for anemia- big mistake,. she was a scatterbrained kept having me come back for no reason. she had mostly cancer patients in the office, and I expect that's how i picked it up.
my rheum is happy to give me ritixumib, but with the recurrent herpes, i think i'd get even worse. he does not take it serously and thinks recurrent herpes is nothing.
thought about sending to that lab in germany, but theres' always so much to manage have not been able to do it.