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Does anyone know of a good (formal) protocol which could be used as a basis for either: 1) educating a hospital on how to deal with an ME/CFS patient; or 2) to set up a specialised ME/CFS ward?
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Does anyone know of a good (formal) protocol which could be used as a basis for either: 1) educating a hospital on how to deal with an ME/CFS patient; or 2) to set up a specialised ME/CFS ward?
Does anyone know of a good (formal) protocol which could be used as a basis for either: 1) educating a hospital on how to deal with an ME/CFS patient; or 2) to set up a specialised ME/CFS ward?
and a hospital agreeing to do a series of CME courses for their doctors and nurses on ME/CFS, fibromyalgia and Lyme.
Thanks Denise. That's actually a good start.The links here: http://www.njmecfsa.org/anesthesia/ are useful but are only about anesthesia.
My general thought is that hospitals are not a great place to have to be - whether one has ME or anything else.
I don't know of a protocol but I hope others have suggestions.
Sorry I am not more help.