Hi guys.
I'm planning on making a brief but detailed collection of 3 or 4 ten minute videos for YouTube.
They will be text based, with images and background music. They'll give an overview of CFS/ME, outline some of the scandal and controversy around it, and conclude with information on XMRV.
The aim is not just to raise awareness about ME/CFS but to highlight some of the roadblocks which slowed progress in research, give credit to some of the champions of research, and act as a sort of "CFS primer" from the view of patients.
Working Title: "CFS - The struggle and the scandal."
If anyone would like to volunteer to help with the project, please let me know. I would be happy to openly run through proposed text edits in this thread in a sort of "open source" style.
There are various topics I want to cover including the following:
The historical origins of CFS/ME
The main symptoms of CFS/ME
Early medical and public impressions of CFS/ME
Progress, and roadblocks. Vested interests, bureaucracy, opportunists etc
Significant figures (both heroes and villains)- Elaine DeFreitas, Simon Wessely, Phil Parker, The WPI (more suggestions?)
XMRV - Recent breakthroughs, vindication for patients, etc
I will begin writing the text soon.
*Please feel free to submit text which may be used, or suggestions for topics, propose edits to text, etc.*
Any help is appreciated.
Thanks,
Declan
I'm planning on making a brief but detailed collection of 3 or 4 ten minute videos for YouTube.
They will be text based, with images and background music. They'll give an overview of CFS/ME, outline some of the scandal and controversy around it, and conclude with information on XMRV.
The aim is not just to raise awareness about ME/CFS but to highlight some of the roadblocks which slowed progress in research, give credit to some of the champions of research, and act as a sort of "CFS primer" from the view of patients.
Working Title: "CFS - The struggle and the scandal."
If anyone would like to volunteer to help with the project, please let me know. I would be happy to openly run through proposed text edits in this thread in a sort of "open source" style.
There are various topics I want to cover including the following:
The historical origins of CFS/ME
The main symptoms of CFS/ME
Early medical and public impressions of CFS/ME
Progress, and roadblocks. Vested interests, bureaucracy, opportunists etc
Significant figures (both heroes and villains)- Elaine DeFreitas, Simon Wessely, Phil Parker, The WPI (more suggestions?)
XMRV - Recent breakthroughs, vindication for patients, etc
I will begin writing the text soon.
*Please feel free to submit text which may be used, or suggestions for topics, propose edits to text, etc.*
Any help is appreciated.
Thanks,
Declan