CFS_for_19_years
Hoarder of biscuits
- Messages
- 2,396
- Location
- USA
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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To CFS and ME patients and activists. I am grateful to those who engage in genuine dialogue. Unfortunately not all do and some waste time playing games of 'gotcha'. I am sorry but life is just too short and those playing games will be blocked. A lost opportunity.
In a way, two lawyers have. A few weeks ago, Simon Wessely engaged Michael Godwin (influential attorney, author, and former classmate of SW) over Twitter and after reviewing the PACE Trial, he has publicly supported people with ME. Steven Lubet, a professor of law and ethics, has written in the past about the PACE Trial and just did another piece on virologyblog. It was interesting that a MP during the Parliamentary debate mentioned the possible exposure some may have for endorsing a program that is harmful to ME patients. I do not know what data remains unreleased from the PACE Trial, but it would be interesting if it does in fact include evidence of harm.Just as we got David T, I am praying for a lawyer that will take on this case. If not for fraud for misrepresentation !!!!