Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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See what you are trying to say, but wouldnt in theory a damaged endothelium or a dysregulated nerve system in theory be able to heal thus alliviating POTS?I'm not sure POTS can be "cured", but for most people it can be controlled through prescription medications. If she hasn't already, your daughter should see a good neurologist with expertise in autoimmune diseases.
It took 5 years of experimenting with different combinations of drugs and doses, but my daughter's heart rate is, at least temporarily, under control. Unfortunately, it hasn't had an effect on her ME/CFS symptoms.
Hi, regarding light and sound and other cognition stuff many of us find a bit help in meds like Lorazepam, (she should not use it more than twice a week if possible) or Gabapentin or similar.My daughter, Natasha, has been bedridden for two years with long covid and CFS.
Has anyone been able to find a way to tolerate light and sound?
Has anyone found any cures for long covid problems or CFS Potts problems. If so please let her know of what helped you in this forum.
YES. Sound sensitivity is the only symptom of CFS that I have been able to fully cure. It was also my worst symptom in terms of how limiting it was on my ability to connect with other humans. It was so bad that the whirring of the air coming out of my vent in my room caused me agony. But I cured it. Fully. Here is how I did it:My daughter, Natasha, has been bedridden for two years with long covid and CFS.
Has anyone been able to find a way to tolerate light and sound?
Has anyone found any cures for long covid problems or CFS Potts problems. If so please let her know of what helped you in this forum.