jackie
Senior Member
- Messages
- 591
hope that she mentions possible initial viral-onset of disease, in listing progression - as others may recognize this as their onset.
Also the "gastro" symptoms (abdominal pain, nausea - waxing/waning) that many of us experience - so often we sometimes take them for granted!
These are different from true IBS (although lots ALSO have IBS) - this may be from the viral component such as Enteroviruses, etc.
Maybe these were listed and I just didn't see them - sorry if I'm repeating!
jackie
ps just read Dr. Donnica's post...re: transmissibility (I'm talking ME/CFS NOT XMRV here!) I wholeheartedly agree with cautious wording here.....all I can offer is what MY doc keeps telling me over and over: usually if more than one family members has cfs it's because they caught it from the same initial viral SOURCE (at the same time)....not from each other (stress the word USUALLY! jury is out on this one!)
Two people drink, maybe water for example w/virus (maybe enterovirus)...one gets immediately sick (genetic predisposition and altered immune response) one is ok as immune response is healthy and fights off virus - maybe it's that simple?
Perhaps the initial virus never goes away (without aggressive treatments of some kind - either to correct immune disfunction or suppress viruses, possibly?) in either person....so that might account for the time lags in appearance of symptoms/disease.....could be it's all about the TH1/TH2 responses. I may be biased as my treatment consist of long term antivirals. Oh, never mind.
Yikes! I'm supposed to BENCHED and resting with my Blankie!....and NOT "talking"
jackie
Also the "gastro" symptoms (abdominal pain, nausea - waxing/waning) that many of us experience - so often we sometimes take them for granted!
These are different from true IBS (although lots ALSO have IBS) - this may be from the viral component such as Enteroviruses, etc.
Maybe these were listed and I just didn't see them - sorry if I'm repeating!
jackie
ps just read Dr. Donnica's post...re: transmissibility (I'm talking ME/CFS NOT XMRV here!) I wholeheartedly agree with cautious wording here.....all I can offer is what MY doc keeps telling me over and over: usually if more than one family members has cfs it's because they caught it from the same initial viral SOURCE (at the same time)....not from each other (stress the word USUALLY! jury is out on this one!)
Two people drink, maybe water for example w/virus (maybe enterovirus)...one gets immediately sick (genetic predisposition and altered immune response) one is ok as immune response is healthy and fights off virus - maybe it's that simple?
Perhaps the initial virus never goes away (without aggressive treatments of some kind - either to correct immune disfunction or suppress viruses, possibly?) in either person....so that might account for the time lags in appearance of symptoms/disease.....could be it's all about the TH1/TH2 responses. I may be biased as my treatment consist of long term antivirals. Oh, never mind.
Yikes! I'm supposed to BENCHED and resting with my Blankie!....and NOT "talking"
jackie