Snowdrop
Rebel without a biscuit
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I think one possible issue is that the pieces the journalists publish are often criticised by people in the ME community. Journalists don't necessarily like their work being criticised especially if they are not opinion-based journalist. Journalists can also often be freelance or not in secure positions.
Something to keep in mind I think. Things like "ME also known as chronic fatigue syndrome" for example may not be worth strong criticism.
Journalists might feel that no matter how hard they try, they will be criticised
If they know this is the case going in (that there is sometimes criticism) then why do they not come to community to get a different POV. After all they routinely liberally quote from the BPS handbook. Maybe once upon a time they only knew there was one side but not now.
Something as simple as: ME also known as chronic fatigue syndrome would go down better if there was a sentence or two as to why PwME have so much trouble with the (everybody gets tired, just go for a run) fatigue issue. Use the word trivialising.
Yes, it can be tough doing a story and I expect it's not for everyone but how hard is it to incorporate a PwME POV or have us direct them to appropriate (checkable) facts and research or even countering opinions from well respected medics (since BPS spew endless opinions not supported by fact).
To me the big fight would be getting it past an editor but lots of journo's pitch stories and fight to have them heard.
And there is the issue of balance. I don't think BPS needs more air/print time--it's had plenty. Balance at this point would be to air/print our POV straight up. And while there is no one universally agreed position that represents PwME there is still plenty that most of us would agree on.