- Messages
- 75
- Location
- Czech Republic or UK
Hi all.
So after living with functional ME for 15 years I had a major setback.
I have now developed bad tingling, prickling, electric shocks, crawling, pinching. This is mainly in my hands and feet but also spreads other places. My energy level is lower than before and I have stopped work to get some rest.
My general blood work is fine, (magnesium, b12, iron ok) although I had a slightly raised white blood cell count. I dont have the money to get lots of expensive tests.
I have been taking vit d 1000, vit c 1000, vit a, vit e, selenium, magnesium, omega 3 1000, and high strength vit b complex for 4 weeks with not benefit.
I have decided to try to beat it with vit b12 fnow
Yesterday I started lingual 2000 vit b12 (cyanocobalamin) for now and stopped the b complex.
I have ordered Jarrow Methylb12 for next week... although on this forum I have discovered that it isnt rated too highly now. However in UK I am not sure what options I have.
I will get some potassium today.
......
For future I have alpha lipoic acid
plus folinic acid, and methylfolate for possible methylation
Anyone got any advice.???. I want to keep things simple at the moment
Anyway this is my diary... it may help someone someday.
Thanks
Matt
So after living with functional ME for 15 years I had a major setback.
I have now developed bad tingling, prickling, electric shocks, crawling, pinching. This is mainly in my hands and feet but also spreads other places. My energy level is lower than before and I have stopped work to get some rest.
My general blood work is fine, (magnesium, b12, iron ok) although I had a slightly raised white blood cell count. I dont have the money to get lots of expensive tests.
I have been taking vit d 1000, vit c 1000, vit a, vit e, selenium, magnesium, omega 3 1000, and high strength vit b complex for 4 weeks with not benefit.
I have decided to try to beat it with vit b12 fnow
Yesterday I started lingual 2000 vit b12 (cyanocobalamin) for now and stopped the b complex.
I have ordered Jarrow Methylb12 for next week... although on this forum I have discovered that it isnt rated too highly now. However in UK I am not sure what options I have.
I will get some potassium today.
......
For future I have alpha lipoic acid
plus folinic acid, and methylfolate for possible methylation
Anyone got any advice.???. I want to keep things simple at the moment
Anyway this is my diary... it may help someone someday.
Thanks
Matt