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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Getting involved and Making ur Voice Heard, from SMCI (Summer 2016) The Fed Gov't and ME/CFS, review

*GG*

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Copying this from PDF file, page 11, last 2 paragraphs. http://solvecfs.org/wp-content/uploads/2016/09/summer-chronicle-2016.pdf

With two new staff members on board, focusing on advocacy and communications, SMCI (Solve ME CFS Initiative) is poised to ramp up its influence. In the past years, SMCI, #MEAction, and advocates across the country have shown that every voice can make a difference.

No matter what your ability, education, or health, Your Story matters. Share your story online, and join the Humans of ME/CFS homecfs.solvecfs.org

Or take your story to the next level. To become part of SMCA's advocacy and volutteer team, contact Emily Taylor etaylor@solvecfs.org or call 704-364-0016 ext. 209.

Posted by me, GG :)