patient.journey
Senior Member
- Messages
- 443
It seems that my first idea of us funding our research was not acceptable or at least that people didn't like that much while i cant figure out why ?!
I just was reading how Japan reduced there funding for CFS/ME research to $76,000 this year and how we are all have this feeling that governments are ignoring us beside the big number of people who they believe of the conspiracy theory !
If we need our voice to be heard we should shout and say something, am sure we all have families and friends and they love to help us so we are not a lone.
We have to raise the awareness of this disease like other illness communities did and lots look at Autism, who doesn't know Autism and that's because of the good work of their community.
Am thinking of campaign that wont cost a lot to tell people about us, a campaign that would include a video documentary, short video, Facebook and other social network commercials, getting media attention and people who never heard about us beside donation.
This will be the first step in bringing our story to the people out side and let them know that it could be them one day.
If we could let 100 million people knows about us this will be a victory and another victory will be if 1 million of them donate even with a 10 dollars for each, beside huge companies as a part of there social interface and celebrities too.
This wont cost a lot but it will make a big difference for us and people will know what is hidden from them in this world.
I just was reading how Japan reduced there funding for CFS/ME research to $76,000 this year and how we are all have this feeling that governments are ignoring us beside the big number of people who they believe of the conspiracy theory !
If we need our voice to be heard we should shout and say something, am sure we all have families and friends and they love to help us so we are not a lone.
We have to raise the awareness of this disease like other illness communities did and lots look at Autism, who doesn't know Autism and that's because of the good work of their community.
Am thinking of campaign that wont cost a lot to tell people about us, a campaign that would include a video documentary, short video, Facebook and other social network commercials, getting media attention and people who never heard about us beside donation.
This will be the first step in bringing our story to the people out side and let them know that it could be them one day.
If we could let 100 million people knows about us this will be a victory and another victory will be if 1 million of them donate even with a 10 dollars for each, beside huge companies as a part of there social interface and celebrities too.
This wont cost a lot but it will make a big difference for us and people will know what is hidden from them in this world.