Hello all,
I have been suffering with symptoms for over a year now and drs are being reluctant to give or tell me anything that helps me. I will give you a brief run through of my difficulties.
I am 35, I WAS a fitness instructor. In March 2012 I lost my sense of smell, I was given antibiotics to clear up any sinus infection I had previously and a nasal spray.
6 weeks later I returned to gp with the same symptoms and given another nasal spray.
By September my smell had returned but was very distorted, food, anything that was perfumed, car fumes all smelt really quite bad, rotten, mouldy and chemical.
things got so bad that I couldn't eat, couldn't be around anything that involved food, perfumes and exhaust fumes.
I returned to my gp and was sent to see ENT drs, by this time I had become exhausted had to reduce the hours I was teaching, began losing weight, became very anxious as I didn't have a clue what was going on and it seemed nobody else did either.
On the evening of November 19th I experienced seizure like episodes, I actually thought at one point I was having a stroke as my face had gone numb on one side, I couldn't feel my hands and my speech became slurred. I couldn't move well at all, my vision became blurry and I felt like I had had a few too many to drink.
I went to A&E the next day as the symptoms hadn't resolved. I had a mri scan which came back with nothing.
From that day on my life has turned upside down.
I lost 2 stone in around 6 months, I have problems with vision, balance, memory, cognitive function, taste and smell, bladder, bowels, temperature regulation, swallowing, speech, joint and muscle stiffness and weakness, extreme fatigue, almost fainting when I stand up or stay up right for too long headaches and prob some other things I can't remember!
I have seen 2 neurologists 1 told me I am converting stress and the other that I have a migraine disorder and was stuck in the aura phase, he stated in his report that my symptoms resemble MS but as I had a clear mri scan he was going to diagnose migraine.
I was put on amitriptyline and take 100mg a night and as yet have seen NO improvement only a very dry mouth!!
My own gp seems baffled by the whole episode as nothing is easing up or changing.
I asked him last week if he thought it could be M.E and he said that I didn't have a sore throat or swollen lymph nodes so no it couldn't be that and requested that I have an ecg as my blood pressure has been all over the place since this started and on exam my heart was racing. He is also testing my thyroid.
I came home and did a little googling about smell and taste and M.E and came across a number of forums with many posts about people's smell and taste being distorted.
I feel like the medical profession has kind of given up trying to sort it out. I've had to battle to get a dietician referral so I can get some food supplements, I am now on pro cal and fortijuce supplements and have gained half a stone taking my weight up to around 8 stone.
I am so tired of it all, my social life is non existent as I struggle so much with smells, noise, constant dizziness and sickness and fatigue.
Any advice, suggestions will be appreciated as I am desperate for answers....
Thanks for reading x
I have been suffering with symptoms for over a year now and drs are being reluctant to give or tell me anything that helps me. I will give you a brief run through of my difficulties.
I am 35, I WAS a fitness instructor. In March 2012 I lost my sense of smell, I was given antibiotics to clear up any sinus infection I had previously and a nasal spray.
6 weeks later I returned to gp with the same symptoms and given another nasal spray.
By September my smell had returned but was very distorted, food, anything that was perfumed, car fumes all smelt really quite bad, rotten, mouldy and chemical.
things got so bad that I couldn't eat, couldn't be around anything that involved food, perfumes and exhaust fumes.
I returned to my gp and was sent to see ENT drs, by this time I had become exhausted had to reduce the hours I was teaching, began losing weight, became very anxious as I didn't have a clue what was going on and it seemed nobody else did either.
On the evening of November 19th I experienced seizure like episodes, I actually thought at one point I was having a stroke as my face had gone numb on one side, I couldn't feel my hands and my speech became slurred. I couldn't move well at all, my vision became blurry and I felt like I had had a few too many to drink.
I went to A&E the next day as the symptoms hadn't resolved. I had a mri scan which came back with nothing.
From that day on my life has turned upside down.
I lost 2 stone in around 6 months, I have problems with vision, balance, memory, cognitive function, taste and smell, bladder, bowels, temperature regulation, swallowing, speech, joint and muscle stiffness and weakness, extreme fatigue, almost fainting when I stand up or stay up right for too long headaches and prob some other things I can't remember!
I have seen 2 neurologists 1 told me I am converting stress and the other that I have a migraine disorder and was stuck in the aura phase, he stated in his report that my symptoms resemble MS but as I had a clear mri scan he was going to diagnose migraine.
I was put on amitriptyline and take 100mg a night and as yet have seen NO improvement only a very dry mouth!!
My own gp seems baffled by the whole episode as nothing is easing up or changing.
I asked him last week if he thought it could be M.E and he said that I didn't have a sore throat or swollen lymph nodes so no it couldn't be that and requested that I have an ecg as my blood pressure has been all over the place since this started and on exam my heart was racing. He is also testing my thyroid.
I came home and did a little googling about smell and taste and M.E and came across a number of forums with many posts about people's smell and taste being distorted.
I feel like the medical profession has kind of given up trying to sort it out. I've had to battle to get a dietician referral so I can get some food supplements, I am now on pro cal and fortijuce supplements and have gained half a stone taking my weight up to around 8 stone.
I am so tired of it all, my social life is non existent as I struggle so much with smells, noise, constant dizziness and sickness and fatigue.
Any advice, suggestions will be appreciated as I am desperate for answers....
Thanks for reading x