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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Haven't heard of any.Is there a place where one can find people willing to partake in this?
I did 14 transplants. And yes, I did get some benefit, but it was very short lasting, about a week. I took too many prebiotics to help support the FMTs and I think it ruined the results. I was planning on restarting the transplants, but my donor got sick and has not had normal stools since.@junkcrap50 how many transplants did you do and did you get any benefit?
I followed the tests recommended online (there is a diy fmt website, but I can't find it right now). Mostly the stool tests and some blood work. I didn't bother with some blood tests like STDs and HIV since it was a parent and we knew they didn't have those.I am planning the same. Healthiest family Member.
@junkcrap50 : did you do Any testing for enteritis pathogens of Donor?
Probably not going by other health bloggers opinions of them.Would something like a metametrix GI effects test be sufficient to test a donor?
That's what I did plus some blood tests. But it was less risky because I used a parent. I would probably run several repetitive tests on a stranger / friend.Would something like a metametrix GI effects test be sufficient to test a donor? It gives all the inflammatory markers as well as microbiome breakdown and tests for pathogens. I'm not sure if they test for all the pathogens possible, though
Want to give a short update, am currently in the middle of my FMT process. Did 5 x FMT enema so far + 3x FMT capsules. (as FMT capsules will reach the complete intestine. did not have any side effects from the capsules)
Where did you get the FMT Capsules? I know there has been ongoing research for many years but I didn’t realise they were available... or perhaps this is diy capsules but don’t you need enteric coated capsules?
All the best for your treatment and I hope you have great success. Please keep us updated how you go along the way and long term. Thanks!