I'm really grateful for everyone taking the effect to respond! And I'm really sorry I didn't reply sooner...
A few days after my last message, my husband told me he wanted a divorce and he left the same day.
So that sucked up all my energy for a while.
In June I tried taking as much folate in food as I could. I assumed that would be the best way to increase my folate intake. But I was wrong...
I didn't expect any negative reactions and it took a while before I realized, but I got the same reaction as to methylfolate. Extreme exhaustion, again.
That's when I decided I had nothing to lose and started Fred's protocol and the paradoxal theory.
The first weeks were the worst, with many new symptoms. Headaches, stomach problems, pain in my upper arms, insomnia and irritability/anger (like PMS x 1000, I think my husband left me just in time
).
After a few weeks I took 10 methylfolate tablets of 1000 mcg out of frustration (my dose at that time was 8000 mcg a day). To my surprise I felt better after that. Three hours later I took another 10000 mcg and that improved my symptoms even more.
So I assumed I needed a really high dose and started taking 50000 mcg a day, but had to cut back a bit because of severe headaches.
It has been 4 months now, but feeling great turned out to be a one-time thing and I have no idea why. I take every supplement on the protocol. Tried potassium for a while, but felt worse and it made me dizzy. A month ago I did a test and my potassium levels were fine.
I've probably tried every dose of folate so far, but nothing seems to work. I still get irritated/aggressive sometimes (overmethylation?) but that also happens when I take just 6000 mcg a day. If overmethylation is a problem, is it better to take less, of keep going on a high dose + niacin?
I was already feeling miserable when I started the protocol, that probably made it harder to find a 'perfect' dose.
For me the biggest problem is not being able to think clearly. Concentration is worse than it's ever been. It's so hard to process information.
When I started the protocol I've read Caledonia's Roadblocks, but I don't think it has a solution for me.
For years I've been in treatment with prof.dr. De Meirleir (Brussels) and the last 3 years with a (orthomolecular) doctor specialized in Lyme.
They both tested and treated everything they could (which was a LOT!).
But I could ask my doctor to read Caledonia's document to see if there's anything we missed.
Is there anyone who can advise me what to do? I really considered giving up, but I don't want to have suffered for 4 months for nothing. Could it take more than 4 months to get any relief/improvement? I don't want to be impatient, but I don't want to be foolish either