(Not a recommendation)
http://www.nihr.ac.uk/blogs/doing-what-is-right-in-a-controversial-field/5370
http://www.nihr.ac.uk/blogs/doing-what-is-right-in-a-controversial-field/5370
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Although treatment is effective,
A study published in the Lancet demonstrated how effective this could be in the Netherlands
Children need to know that their treatments are effective
Yes, it feels very reminiscent of PACE. She seems to already "know" the treatment works, the trial is just a formality to her.She sounds biased.
I'm not sure if she's referring to MAGENTA or FITNET, but 4,200+ people signed the petition against MAGENTA. I'm guessing that is a much larger number than the number of people who "love" the treatment they get from her clinic.There are a small group of people trying to stop the trial from proceeding.
If she can name even one serious biomedical researcher that left the field because of opposition from patients I'll eat my hat.And whether I should follow countless other CFS/ME researchers and leave the field.
And whether I should follow countless other CFS/ME researchers and leave the field.
The long-term follow-up result is the main outcome for any treatment study.Although treatment is effective,
A study published in the Lancet demonstrated how effective this could be in the Netherlands
Children need to know that their treatments are effective
She fails to mention as she usually does that there was no statistically significant difference in recovery rates at long-term follow-up in the Dutch trial.
She really is amazingly self-satisfied and manipulative. Amoral.
I'm not surprised she's had letters begging to be involved in Fitshit after the huge media blitz claiming it as a cure. There are lots of desperate sick people out there.
Ohohoho... not the fact that you directed children to read publicity material for the non-medical intervention (LP) in your 'feasibility' study (in which the children taking part would undergo the 'treatment' you wanted to 'test') or the fact that you directed parents to give practitioners with no medical qualifications your child's personal medical details or the fact that you misled the ethics service etc. etc. Oh no, that doesn't keep you awake at night you charlatan. (apols for garbled rant, that was about SMILE trial).It is stories like this that have kept me awake at night over the last decade.
Problems with FITNET were mentioned and Dr Radford was aware of this and stated that FITNET was being reviewed.
One concerning children and the deplorable state that exists as well as case studies of children badly affected by the way that the existing mentality toward ME is allowed to distort proper healthcare. In this document evidence was presented to the CMO of the way many families of children with ME are being harassed and subject to child Protection proceedings.
Though the establishment organisations have totally failed children with ME the harrassment is not, however, confined to vulnerable patients or their families either - as witnessed by this story.