Hi @
Gingergrrl43 Dr. Kogelnik is indeed my ME specialist.
Last time I spoke with Lorie (his RN nurse), about a month ago, she told me that although he is very busy with research and grants submissions on top of the clinical practice, he's still seeing patients and Dr. David Kaufman is too and there is ongoing cooperation between the two of them.
From the little searching and reading on the net about Dr. Kaufman he seems an excellent doctor with 30 years worth of experience in internal and infectious disease medicine (HIV and Lyme included), but I don't know him personally.
I've also seen Dr. John Chia in Torrance (back in 2012). He is the ME/CFS doctor researcher focusing on EV (cosackie and echo viruses). He also is a cosignatory of the ICC (international consensus criteria on ME).
Although he is an excellent and caring doctor I'm not currently under his care.
There is a patient of his who has a blog (quixoticmeblogspot.com) on which he writes extensively about treatments and progress, or lack of it, with Dr. Chia.
IMHO you should ask your ND to run some basic herpes viruses titers blood tests (EBV, HHV6, CMV, HSV1 and 2) as per Dr. Montoya's clinic and possibly a NK function test (Quest Diagnostics is the lab used for these test by Dr. Kogelnik) for a start, if you haven't already have them done.
If I was you I'd call Dr. Kog and Dr. Kau and get in their clinic asap, either doctor I'm sure would be great.
As far as treatments Dr. Kogelnik is very much focused on AV antivirals, if that is your case, so you need to judge before hand if you can and are willing to take them. This is a general statement that I'm making, each one of us is different and has a different ME picture, many roads lead to ME/CFS ...
If you're happy with your ND you can see Dr. Kog or Dr. Kauf or Dr. Chia in parallel and try to coordinate the different interventions.
I hope I'm being of help, if you'd like to have more in depth info don't hesitate to pm me. I'll do my best to help you
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