Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Reading through it just seems like ramblings of overtly suspicious people paranoid about conspiracies!?!
Reallyyyy not helping the, "cfs/me does not have a psychiatric/personality disorder origin" chaps.
Though I can see the disdain at the advocation of homeopathy. Pure psuedoscience. Just wish people would express their views in a less 'conspirational' way, doesn't help get their points across.
I just posted a blog on the NEI Center in New Jersey. Its a great project! To show how political these things get - the center was originally going to involve Lyme disease as well and Marly got the support of an international Lyme organization but when a Lyme organization based in New Jersey found out about it they hit the roof and sabotaged the project because Lyme Disease is a real disease and chronic fatigue syndrome is not. They couldn't bear to be associated with us. So they got their political contacts to stop the project just as it was about to be voted on. They also went after one of the principals of the project at the University he works at. Now he has had to back way off because the university is upset. They've also spread rumors that the project was going to have a psychiatric slant. Its really ugly stuff.
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