starryeyes
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Yes Justin, after XMRV was discovered in CFS on Oct. 8 people started asking if it was the same as DeFreitas's CAV. Dr. Bell made a statement that we shouldn't be asking about that and the WPI came out with a Face Book page announcement that XMRV is not DeFreitas's CAV. I can't recall if the WPI also stated we shouldn't be asking about CAV or what happened to it but I do recall that was the gist of what we were getting from them. I want to know why.
Dr. Nancy Klimas stated on video that they could be the same retrovirus but admitted she didn't know. I thought it was interesting that she completely side-stepped that question when you asked her:
That was her entire answer to your question which I just inadvertently came across at:
http://www.dailystrength.org/groups/virus-killers/discussions/messages/8164016
Did you see this post of mine that's earlier in this thread about DeFreitas's CAV? Or did you mean that you want more information about CAV then the link to the CFIDS Foundation in this post provides?
http://www.forums.aboutmecfs.org/sh...trovirus-CFS-Study&p=9149&viewfull=1#post9149
I wish more scientific researchers would look into this situation and tell us if this CAV is a retrovirus that could also be causing CFS.
This is from Dr. Bell's current letter of appeal for funding the WPI:
Dr. Nancy Klimas stated on video that they could be the same retrovirus but admitted she didn't know. I thought it was interesting that she completely side-stepped that question when you asked her:
Is this the same virus as the ��novel�� XMRV?
Justin Reilly
A.
Dr. Klimas responds:
Dr. DeFreitas was doing exciting work and should be congratulated for her early results suggesting retroviral infection in C.F.S. Since that time, technology has advanced in a dramatic way, giving investigators new tools to search for viruses that were yet to be identified in 1990-92, including the XMRV virus.
New antiviral drugs have also been developed that could potentially be effective in controlling this sort of infection. We also have a much stronger understanding of these drugs�� toxicity and safe use.
I congratulate the Whittemore Peterson Institute researchers for their diligent work. I am also very happy for Elaine today. I would also ask patients to be patient a little bit longer so that researchers can devise and perform the sort of clinical trials that will let us know if this virus is the linchpin in continued illness.
That was her entire answer to your question which I just inadvertently came across at:
http://www.dailystrength.org/groups/virus-killers/discussions/messages/8164016
Did you see this post of mine that's earlier in this thread about DeFreitas's CAV? Or did you mean that you want more information about CAV then the link to the CFIDS Foundation in this post provides?
http://www.forums.aboutmecfs.org/sh...trovirus-CFS-Study&p=9149&viewfull=1#post9149
I wish more scientific researchers would look into this situation and tell us if this CAV is a retrovirus that could also be causing CFS.
This is from Dr. Bell's current letter of appeal for funding the WPI:
• In 1990 I worked with Dr. Elaine DeFreitas and Dr. Paul Cheney, and a retrovirus was found and the material published(1). A second paper had been accepted by PNAS and contained a photograph of C-type retroviral particles from a tissue culture of spinal fluid of one of the children in the Lyndonville outbreak. This paper was suddenly pulled and not published after a couple of flawed negative papers. A complete description of these troubled times is in Ostler's Web by Hillary Johnson. The funding for our studies was pulled and all work on this abruptly stopped.
I think the same tactics are being employed to hamper the current work on XMRV by the WPI.
Thank you.
David S. Bell MD, FAAP