Trudie Lobban MBE, Founder and CEO of STARS, said: ‘This case is a classic example of how hugely debilitating PoTS can be.
‘Common symptoms include a racing heart on standing up, palpitations, fainting, dizziness, chest pain and weakness.
‘There is a significant lack of awareness about PoTS among both the public and the medical profession.
‘We often find the disorder is under-recognised by physicians, which can impact on the patient’s quality of life through misdiagnosis or being informed symptoms are “all in their head”.
‘As a consequence, historically many patients with PoTS have been given a diagnosis of ME, anxiety or panic attacks.
‘Despite the lack of awareness, the disorder is quite common. In young women, some estimates put the number of people with the condition higher than one in 100.
‘At STARS our main aim is to raise awareness of PoTS and other disorders which cause unexplained loss of consciousness.
‘Our Heart Rhythm Week, from 2 - 8 June 2014 is our opportunity to focus on a broad range of disorders, like PoTS, which affect a person’s heart rhythm and can cause debilitating symptoms like Paige’s.’
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