JBB
Senior Member
- Messages
- 188
Re the reliability of this poll: How about we have a "general" poll section on PR to post small surveys like this? It would be useful for all sorts of stuff.
Best wishes,
J
Best wishes,
J
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I tested positive for borrelia by PCR (RED labs) and confirmed by genetic sequencing.
All I know is that when RED Labs (Belgium) get a positive by PCR, they like to confirm this by sending the sample to Liege University who do the DNA sequencing. I can't remember the exact chances of a false negative for the sequencing, but it was very low (my doctor either said 1 in a million or 1 in a billion, I can't remember).I haven't heard of genetic sequencing as a means to test for Borrelia. Which test was that, and how reliable is it considered to be?
Do you live in a Lyme area of the UK, by the way?
Hi @Min! Thanks! May I also ask you if you have been diagnosed with ME/CFS and/or meet any of the criteria? Also, could you please let me know which tests did you have done?
I have no official diagnosis but I meet the Canadian criteria.Hi @cigana, thank you very much for adding your info! Could I ask you weather you have been diagnosed with ME/CFS and/or meet any of the recognized criteria?
Best!
Sergio
It seems that numerous members here discover after years of CFS diagnostic that they are also positive for a Tick Born Disease.
PS- I will share the statistics here.