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I'm not too sure if I've chosen the right section to post this under as I know it's not medical research but it is a current study looking for recruitment!
If anyone knows of any good places where I could post this participation advertisement that would also be extremely appreciated!
I would also like to note that I am not disputing the medical causes of ME/CFS. This research is to find out about the effects on siblings. There is little research which has focussed solely on the effects of ME/CFS in separation from other chronic illness which have been looked at in more depth such as paediatric rhumatoid arthritis and cancer to name a few.
Here is the information about the study:
If anyone knows of any good places where I could post this participation advertisement that would also be extremely appreciated!
I would also like to note that I am not disputing the medical causes of ME/CFS. This research is to find out about the effects on siblings. There is little research which has focussed solely on the effects of ME/CFS in separation from other chronic illness which have been looked at in more depth such as paediatric rhumatoid arthritis and cancer to name a few.
Here is the information about the study:
I am an MSc Rehabilitation Psychology student at the Institute of Work, Health and Organisation at the University of Nottingham conducting research to find out about the effects of paediatric CFS on their well-siblings. I'm really struggling to find participants and I think this is a really worthwhile peice of research so please help out if you can! I cannot express how much would appreciate it!
To do this, I need siblings of CFS/ME sufferers to fill in a number of questionnaire measures about their quality of life and emotional well-being, as well as collecting parent reports from the primary care giver.
I am also looking to recruit participants for a telephone/internet interview phase to get more detailed information from the siblings about their perceptions of their siblings illness and its impacts.
Participants must fit the following criteria:
• The well-sibling and ME/CFS child must be aged between 8-17 years old
• Their sibling must:
o Cohabit with the well-sibling
o Have a medical diagnosis of ME/CFS
o With symptoms for a minimum of 6 months
• No other chronic illness not relating to their ME/CFS
• Immediate family other than the ME/CFS child should not have suffered from an chronic illness within the past 5 years
This study has great potential for publication as there's little previous research, and it is a crucial part of my Master’s degree, so any participation possible is extremely appreciated!
For those who are willing to help out with the questionnaire measures you can follow the links below:
The Parent Questionnaire:
The Sibling Questionnaire: (this has information for you to read at the start before handing over to your child)
I can also send out paper versions if that would be preferable.
If you are interested in participation in the questionnaires and/or interview phase then please contact me on lpxket@nottingham.ac.uk for more information.
THANK YOU!