JustJack
put on yer dancin' shoes
- Messages
- 53
- Location
- Sacramento CA
Can I echo and join in...
Hi you beautiful women, suffering everyday with the same journey only different "fill in's" for what we did, who we were, and what we believed about the world and life.
I was a theatre producer/director, actor, teacher and choreographer. I know that I can never have that again, but working that through is deeply difficult. I wake up everyday and think, I am not really sick, how could I be this sick, all the time, for so long, that it never stops and lets you "play the game of life."
I feel like I pretend and show a good face to others, I mean, what can you really say, how can you make someone understand that has not either gone through this themselves, or family or a close friend, or lived, sequestered for any reason, for more than 6 mo to a year minimum at a time.
Jody, you said that you poked your head back in and saw that the landscape changed, they had moved on, you were absent for too long. That's the problem, our continued absence. Whatever you started while you were feeling well enough got demolished the minute you crashed and there was not a chance of putting the pieces together again.
Nothing can ever change what has happened to those of us that suffer from moderate to severe ME/CFS. I haven't been here long, and I am no expert, I am just a woman in her 50's who has been full blown ME/CFS since 1997 and now completely housebound for the last two years. And, I loved my busy, crazy, non-linear life. Now I plan for which room to clean in my house and when (since I have big OI and am wheelchair bound mostly), going shopping/doctors on Thursdays with my mother-in law and cooking dinners for my husband, who thank god loves me no matter what, and not turning into a complete vegetable.
The women here in our age range speak almost like one. We chronicle the ravages from this illness with our collective stories. I can only pray that someday we are redeemed, validated and that studies on us will help stop this DD in its tracks.
Thank you for allowing me to join your ranks and feel your spirits through this cyber world we have together.
Hopefilled and Happy New Year
Much love,
Jackie in Sacramento
Hi you beautiful women, suffering everyday with the same journey only different "fill in's" for what we did, who we were, and what we believed about the world and life.
I was a theatre producer/director, actor, teacher and choreographer. I know that I can never have that again, but working that through is deeply difficult. I wake up everyday and think, I am not really sick, how could I be this sick, all the time, for so long, that it never stops and lets you "play the game of life."
I feel like I pretend and show a good face to others, I mean, what can you really say, how can you make someone understand that has not either gone through this themselves, or family or a close friend, or lived, sequestered for any reason, for more than 6 mo to a year minimum at a time.
Jody, you said that you poked your head back in and saw that the landscape changed, they had moved on, you were absent for too long. That's the problem, our continued absence. Whatever you started while you were feeling well enough got demolished the minute you crashed and there was not a chance of putting the pieces together again.
Nothing can ever change what has happened to those of us that suffer from moderate to severe ME/CFS. I haven't been here long, and I am no expert, I am just a woman in her 50's who has been full blown ME/CFS since 1997 and now completely housebound for the last two years. And, I loved my busy, crazy, non-linear life. Now I plan for which room to clean in my house and when (since I have big OI and am wheelchair bound mostly), going shopping/doctors on Thursdays with my mother-in law and cooking dinners for my husband, who thank god loves me no matter what, and not turning into a complete vegetable.
The women here in our age range speak almost like one. We chronicle the ravages from this illness with our collective stories. I can only pray that someday we are redeemed, validated and that studies on us will help stop this DD in its tracks.
Thank you for allowing me to join your ranks and feel your spirits through this cyber world we have together.
Hopefilled and Happy New Year
Much love,
Jackie in Sacramento