I'm feeling a little overwhelmed, I was diagnosed with CFS/ME by my GP a year ago, this diagnosis came about because all my test came back showing a picture of health and my symptoms could not be explained. My GP is one of the rare ones who does believe CFS/ME is a 'real' condition but admits she know little about it.
I now not sure if I have have CFS/ME or just a toxic body and I'm feeling very overwhelmed by all the information and treatment protocols - to the extent that I find myself doing nothing out of fear of making myself worst.
I would class myself as moderately affected. I have OK days and bad days, but I can't see a definite PEM pattern. I had cognitive problems, but I think these might have been due to D-lactate acidosis, they have improved since treating that. I now have brain fog rather than cognitive issues. I also have the pain which comes and goes and also moves around the body, so is not caused by and injury. I have major gut issues/food intolerance.
I did a comprehensive stool test which showed I had the bacterial pattern of someone with CFS/ME according to the info on Ken Lassenen site. (I also have a Blastocytsis infection.)
I have low white blood count for over a decade (the only test that comes up with anything)
I have missing fingerprints.
I have alcohol/medication intolerance.
I have POTS.
Now what makes me think I don't have CFS/ME is that I've recently discovered I have histamine Intolerance, following the diet has helped somewhat. Now with histamine if you have too much in your body the best way to improve your situation is to fast. I discovered that if I don't eat anything for a couple of days I feel great. I have a clear head and my energy is improved. Now if I had CFS/ME this wouldn't be the case?
I have also been tested for heavy metal toxicity, it came back with very high levels of Aluminum, Lead, Silver, Mercury, cadmium, bismuth. Aluminum being the highest.
So your thoughts, do I have CFS or is it just bad gut and heavy metals?
I now not sure if I have have CFS/ME or just a toxic body and I'm feeling very overwhelmed by all the information and treatment protocols - to the extent that I find myself doing nothing out of fear of making myself worst.
I would class myself as moderately affected. I have OK days and bad days, but I can't see a definite PEM pattern. I had cognitive problems, but I think these might have been due to D-lactate acidosis, they have improved since treating that. I now have brain fog rather than cognitive issues. I also have the pain which comes and goes and also moves around the body, so is not caused by and injury. I have major gut issues/food intolerance.
I did a comprehensive stool test which showed I had the bacterial pattern of someone with CFS/ME according to the info on Ken Lassenen site. (I also have a Blastocytsis infection.)
I have low white blood count for over a decade (the only test that comes up with anything)
I have missing fingerprints.
I have alcohol/medication intolerance.
I have POTS.
Now what makes me think I don't have CFS/ME is that I've recently discovered I have histamine Intolerance, following the diet has helped somewhat. Now with histamine if you have too much in your body the best way to improve your situation is to fast. I discovered that if I don't eat anything for a couple of days I feel great. I have a clear head and my energy is improved. Now if I had CFS/ME this wouldn't be the case?
I have also been tested for heavy metal toxicity, it came back with very high levels of Aluminum, Lead, Silver, Mercury, cadmium, bismuth. Aluminum being the highest.
So your thoughts, do I have CFS or is it just bad gut and heavy metals?