Little Bluestem
All Good Things Must Come to an End
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GracieJ, What do you suggest that people use for dry hands and skin? What is your take on bubble bath, bath salts, etc.?
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I use olive oil or apricot oil when my skin is dry, applied sparingly, and sometimes apply it at night. I stay away from bubble bath and bath salts and do not paint my fingernails. Epsom salts are my big splurge with a few drops of lavender oil if I want it to smell nice. Shampoo, deodorant, and bath soap are a little harder, but good ones are out there. My downfall is hair dye... just not ready to look my age (at 51, still pass for 15 years younger) esp with this disease state. I know it's the worst thing I do.GracieJ, What do you suggest that people use for dry hands and skin? What is your take on bubble bath, bath salts, etc.?
I think it's apropos. Don't challenge the liver, it works better. That is exactly what I have in mind as I reduce the chemicals around me.This is a weird turn of conversation content for this thread
The normal liver enzyme test for AST (SGOT) and ALT (SGPT) don't apply here bc they only spill out of the liver into the bloodstream when the liver is damaged or injured. Our livers are Not damaged or injured, it is more subtle than that, they are malfunctioning.
Well said - I agree.In general a big subset of CFS patients can be grouped into 2 of the following 2 very important symptoms:
1.) The liver: It has trouble detoxing and making and moving bile out of the body. Symptoms that confirm this are the inability to sweat and pale colored stools especially when sick or stressed. Healthy stool color is very dark. Think Mr Hanky the Christmas poo from South Park.
2.) Lower body temperature than healthy people. About a degree or 2 less than 98.6. If this temperature is recorded daily for a prolonged period of time you correspond to the CFS that I have. This is very important ! Body enzyme systems cannot function if the body temperature is too low. The reactions won't go through and they breakdown under stress easily. It does not necessarily mean that your thyroid is not working properly although sometimes toxins backed up from a weak liver detox can make the thyroid malfunction too. It's just that the systems themselves have problem going through.
I think this is why CFS/ME is so mystifying becos it is 2 separate and distinct systems that have broken down in the same individual. Everything else that happens is fluff.
And if you have had CFS/ME since your late teens or early 20s, there is a very big psychological component to it as well.
In general a big subset of CFS patients can be grouped into 2 of the following 2 very important symptoms:
And if you have had CFS/ME since your late teens or early 20s, there is a very big psychological component to it as well.
Hold on a second here my friend.
There is no evidence base in research for a 'big psychological' component' in ME at all. Depression rates, for example, in CFS are no greater than MS (Multiple Sclerosis), which is very impressive as ME (via CFS) is rejected by the medical profession.
I would agree for some people labeled with ME or CFS they may go onto suffer from secondary depression and suicidal feelings which is a normal human reaction to being neglected in society and blamed for their own suffering. (CFS and ME being seen as a mental and behavioral illness by psychiatrists and their followers).
undcvr, may I politely suggest It might be prudent to be a little more sensitive about making such sweeping statements about 'big' psychological dysfunctions in CFS/ME. I say this as many with ME on this forum would be offended by that comment, because they don't suffer from a psychological health problem and cope incredibly well. I won't react to it emotionally as it doesn't concern me personally. (I don't suffer from a mental health problem) but many might.
NB: The biopsychosocial school of theory about what causes and maintains CFS/ME (e.g. ''beliefs'' in an undected/untreated organic cause) causes great harm to people with ME because these people who are often psychiatrists/psychologists working in leading teaching hospitals prevent medical tests being performed and advise other doctors not to investigate physical symptoms, simply by their theories. Some ME sufferers thus unnecessarily suffer because their organic dysfunctions, such as arthritis/autonomic dysfunction/heart arrhythmia are not detected.
Subsequently the ME patient is harmed by the medical profession and their 'beliefs'.
CFS/ME label includes a large array of fatiguing disorders of unexplained cause, both physical and psychological, however, it is not a green light for mental health theories to be 'fact', even if this is the wish for people on those professions to believe they run the town.
Thank you.
In general a big subset of CFS patients can be grouped into 2 of the following 2 very important symptoms:
1.) The liver: It has trouble detoxing and making and moving bile out of the body. Symptoms that confirm this are the inability to sweat and pale colored stools especially when sick or stressed. Healthy stool color is very dark. Think Mr Hanky the Christmas poo from South Park.
2.) Lower body temperature than healthy people. About a degree or 2 less than 98.6. If this temperature is recorded daily for a prolonged period of time you correspond to the CFS that I have. This is very important ! Body enzyme systems cannot function if the body temperature is too low. The reactions won't go through and they breakdown under stress easily. It does not necessarily mean that your thyroid is not working properly although sometimes toxins backed up from a weak liver detox can make the thyroid malfunction too. It's just that the systems themselves have problem going through.
I think this is why CFS/ME is so mystifying becos it is 2 separate and distinct systems that have broken down in the same individual. Everything else that happens is fluff.
And if you have had CFS/ME since your late teens or early 20s, there is a very big psychological component to it as well.
With those two criteria I'd say i def have what you call "your CFS". But if so doesn't treating with AVs creating a sort of catch-22? I hv yet to hear of someone who reduced their viral load PURELY by the process of egestion and Valc. is very hard on the liver. But at the same time, ironically if you take it you also take the stress off the liver from having to detox virus.
Someone correct me if i understand this wrongly.
Hold on a second here my friend.
There is no evidence base in research for a 'big psychological' component' in ME at all. Depression rates, for example, in CFS are no greater than MS (Multiple Sclerosis), which is very impressive as ME (via CFS) is rejected by the medical profession.
I would agree for some people labeled with ME or CFS they may go onto suffer from secondary depression and suicidal feelings which is a normal human reaction to being neglected in society and blamed for their own suffering. (CFS and ME being seen as a mental and behavioral illness by psychiatrists and their followers).
undcvr, may I politely suggest It might be prudent to be a little more sensitive about making such sweeping statements about 'big' psychological dysfunctions in CFS/ME. I say this as many with ME on this forum would be offended by that comment, because they don't suffer from a psychological health problem and cope incredibly well. I won't react to it emotionally as it doesn't concern me personally. (I don't suffer from a mental health problem) but many might.
NB: The biopsychosocial school of theory about what causes and maintains CFS/ME (e.g. ''beliefs'' in an undected/untreated organic cause) causes great harm to people with ME because these people who are often psychiatrists/psychologists working in leading teaching hospitals prevent medical tests being performed and advise other doctors not to investigate physical symptoms, simply by their theories. Some ME sufferers thus unnecessarily suffer because their organic dysfunctions, such as arthritis/autonomic dysfunction/heart arrhythmia are not detected.
Subsequently the ME patient is harmed by the medical profession and their 'beliefs'.
CFS/ME label includes a large array of fatiguing disorders of unexplained cause, both physical and psychological, however, it is not a green light for mental health theories to be 'fact', even if this is the wish for people on those professions to believe they run the town.
Thank you.